Skip to main content

One Step at a Time

Newest Hospital Update:

 As you may have been reading, I was hospitalized on last Wednesday (my 31st Birthday). Tomorrow will mark a full week in the hospital. When I was first admitted I couldn't have done a lap around the hallway without a huge cough attack. Today, I can do 3 laps (getting out of breath) with no coughing attacks! Whoot whoot!

I have been posting updates via videos on my Facebook Page. The last one I posted was "Not a Happy Camper" (where I didn't have any hot water for 4 days and I had been waiting for my breakfast for almost an hour and a half).  Good news. They did bring me a new tray right away and they fixed my hot water later in the day. Since my water wasn't fixed in time for my shower yesterday, they had me shower in the (empty) room next door. Haha, I was a little jealous of the windows next door...

(I mean look at that beach!)...

Haha, my room has birds on the windows. The beach is a lot nicer, but that's okay. At least I got a hot shower and since that food tray problem, my meals have been more accurate lately.

Now, for the health update:

Well, I did my breathing tests yesterday (PFTS) and Doc said I'm about 50% improved... I'm assuming since I was down around 15%-20% in lung function that I gained around 8-10% back. Doc doesn't like to bring up the numbers, since I obsess over them sometimes. I'm guessing I'm mid 40s. Doc said we are hoping to have me out by Friday :-) YAY! However, going home on IVs is not easy. So there is a lot more work ahead of me.

I LOVE the idea of being home and seeing Andrew, getting back to work, back to my life. BUT, it's not that simple. When I go home on IVs I still have to keep up with the complete hospital routine. Which means...

5am - take IV out of fridge
6am- 7am- Aztreonam IV runs
7:00-8:30am - albuteral, hypertonic, etc nebs & vest, clean nebs
8:30-10:00 -shower, food, etc
11-12:00pm -2nd set of nebs & vest, clean nebs
1pm -take IV out of fridge & eat lunch, pills
2:00-3:00pm- Aztreonam IV runs
4:00-5:00pm - 3rd set of nebs & vest
6pm take out of fridge IV and dinner/ pills
7:00-8:00pm Tobra IV
9:00-10:00pm unhook Tobra, take IV out of fridge, and do 4th set of nebs & vest
10:00-11pm Aztreonam IV
midnight - unhook & bed!!!!

Wake up at 5am and REPEAT every day! Since Andrew works 12-15 hour work days, it makes it a little harder. Being nurse and patient is tough.

So yes, while I am happy to go home (hopefully) this weekend and be with Andrew. I'm nervous I will get sick or run down trying to do it all by myself... But, one day at a time. Or more like 1 step at a time... Going to do a few more hallway laps tonight before Andrew heads home. Hoping to stay on the right track and get that lung function back!

Andrew works the rest of the week, but I was glad he got the 48 hours here that he did!

Keep you all posted and thank you for your love and support!


Labels:

Comments

  1. domino 99April 29, 2016 at 2:44 AM

    so sad to know you'v been sick,, now you'r okay right?
    I have saw your photos and really interested to know you,,I live in Indonesia, and hope that we have a chance to meet each other :D
    Hope you not sick again, have a healthy day ^^
    If you want to contact me, please give me a new on my private email: agustanto4455@gmail.com

    ReplyDelete
  2. idblogpediaMay 7, 2016 at 5:42 AM

    This comment has been removed by a blog administrator.

    ReplyDelete
  3. obat pembesar penisApril 20, 2017 at 3:01 AM

    nice for sharing....

    ReplyDelete
  4. CherizJune 2, 2017 at 12:31 PM

    Thank you everyone for the nice comments, it is good to know people enjoy reading this blog. Have a great week!

    ReplyDelete

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...
18 comments
Read more

Beginning of the Year Troubles

Normal "beginning of the year" troubles for Andrew and I only really consist of one topic: Our Deductible [please no Obama, or government bashing] I've always had high deductibles ALL MY LIFE (no matter who was president). The problem is I hit my deductible within the first week of January. In the past I have always prepared for this and since I was still on my father's insurance (up until last year) he typically paid the bill (at least for medical stuff). And in the future Andrew & I won't have such an issue with this. We will be able to save and plan ahead for the $3,000 (for my deductible, his is another $3,000). However, this year was more difficult. We saved all 2013-2014 for our wedding & honeymoon, plus had our deductible saved too. But Real Estate was a pricey career to start, I've put almost $5,000 into it (classes, dues, licensing, exam, advertising, etc). So needless to say our deductible disappeared, thanks to my new career. Wh...
10 comments
Read more

My Clinical Trial Mess

A Clinical Trial Mess: Monday, I had an appointment for a clinical trial evaluation. Let me start out by saying, I always get  amazing care at my doctors...HOWEVER, this evaluation was done by a third party brought in to handle the research. The research nurse was a flibberty jibbet. She was nice, but kept just re-organizing her supplies, like she didn't know what to do. She seemed nervous. She mentioned she usually had another nurse with her. She took my weight, height, urine test, pre-med spirometry test (PFT-pulmonary function test) Next she decided to draw the blood, while waiting for the pft results to print. She got out the supplies and the sterile paper that she places it all on. She dropped te paper on the floor and proceeded to place the packaged needles and supplies on it.... So in my head I tell myself "Okay...( inhale control exhale my germfreak...) it's okay, it won't kill me..it only touches the bottom of my arm, not the actual place that she is dra...
6 comments
Read more