Skip to main content

All the Updates!

Lots Going on & Beyond Excited:

I've been writing about some big topics that discuss how Cystic Fibrosis affects Marriage. Not all the changes are bad. Yes, moving to new locations for my Husband's work means the hassle of switching pharmacies, updating info with all doctor's offices, and even deciding whether or not to switch doctors. I wrote a whole blog post on why choosing & deciding whether or not to stay with our current doctors is so difficult. However, I LOVE where we are living right now & we are closer to my hometown, so I can still be involved as much as I want. It's a good area for Real Estate too (which I will be starting once we are back from our Honeymoon).

 I'd say the hardest part for me post-marriage has been switching insurance & switching pharmacies. We have a good insurance plan (we pay $3000 per person for a deductible) because it cover 100% of all specialty drugs post deductible, there is no 20/80% costs or co-pays, etc. But, it took so long to switch me over that I went without meds for a while...

I got added to Andrew's insurance on Friday. We turned in the paperwork days after being married, But his #insurance...
Posted by Cheriz: My Life with Cystic Fibrosis on Tuesday, September 22, 2015

The worst or best part depending on how you look at is the $3,000 deductible we will ALWAYS have to pay all at once (since my meds cost more than that). But at least we can prepare for it every January. I blogged about all the insurance & financial hassles that came along with my Cystic Fibrosis in last post (scroll down).

However, today, I wanted to give you all the updates. I'm very excited to share we leave for our Honeymoon on Monday! That's right in less than 1 week, I will have 6 glorious days to spend with Andrew! I will share about our trip when we are back on Friday, October 2nd.  Then on October 3rd we are attending the CF Walk in Peoria, IL! I helped plan the Peoria Walk this year, and I'm the speaker for the event. I was the speaker of the Champaign, IL Walk in 2014, check out the video HERE (on my YouTube Account). So if you are free, you should come and support the CF Foundation! It's a great walk route, actually I think it is the best (out of the 9) I have been too! Click HERE to go to my Peoria CF Walk Page to join or donate!

Overall, I'm doing okay, but I'm just waiting on the new insurance & pharmacy to get my Cayston & Pulmozyme filled. I need them asap! I have to have them before we leave for vacation. Luckily, the new pharmacy (where Andrew works) seems on top of everything. They call me everyday with an update on how the progress is coming. The problem is the specialty pharmacy doesn't have Cayston (It's a limited distribution med). Which means they have to override it and get the insurance to okay it coming from a different out-of-network pharmacy for the in-network price. Which is why it is taking longer, but hopefully I will have some great updates for you on Friday! Make sure to check out my Facebook page for the updates & to see how I am doing. Also, I posted this video from our wedding. I wanted to share it on here too, since I promised in my "Wedding Post". It was Andrew's Surprise for me. Right after I announced I had a surprise popcorn bar planned for him, he did this:






He's such a sweetheart, I can't wait to spend 6 days with him & for him to enjoy his time off work! Andrew, I love you so much!!!




Comments

  1. Its really nice article and you are including more and effective information regarding this subject in an well written format.Thank you so much.Students can approach custom essay writing service for more details about writing works and students buy college essay by taking this service help.

    ReplyDelete

Post a Comment

Popular posts from this blog

Leaving on an Airplane, don't know when I'll be..oh, wait I return on Sunday!

VACATION YAY! Tomorrow I head to my uncles' and stay there, then Thursday morning, EARLY in the morning, we are headed to the airport! We are flying into Buffalo, NY and spending Thursday at Niagara Falls! Friday and Saturday I have no clue what we are doing! I know there is a surprise for me. But I'm not sure what it is. All I know is I'm soo excited to go! Last Fall I went to Las Vegas with my friend Amanda! It was soo much fun and had been like decade..seriously 10+ years...since I had been on vacation (well more than wknd trips to see friends who live within a 10 hr drive, hee hee Kym!) When I get back from my trip this weekend, I will post about it too! I just have to pack a little more when I go places and make sure to do my meds. On top of the regular, clothes, etc that most people pack  I will also pack: therapy machine 5 nebulizer cups  28 vials of medicine for my nebulizers over 150 pills I will take during the wknd 16 cans of stomach...

Tech-savvy Thursday- new look!

New Look: Getting Tech-Savvy: Since, I'm getting more involved in blogging, I decided it was time to give my blog a makeover! eMake-overs are always fun, whether you getting a new hair style, or outfit at the mall. However, I've been researching a lot about blogs and social networking. And I thought it may be time to update my blog's look.      I think I like my new one (at the top) a lot better than the old one (pictured on right). What do you think? I wanted my blog to feel more personal and I wanted to make it more tech-savy. I kept the black/purple color scheme. But made the purple the main color instead (and made it a softer purple). I then started looking up how to make my own buttons, widgets, etc. It isn't too hard to find tutorials for anything these days, between google, pinterest, and forums, you can pretty much find instructions for anything. I used a simple code and photobucket to make my own buttons: I think my new Tw...

LOTS, LOTS, LOTS to Tell!

Doing What I Can: People can tell me " Wow, how do you keep up with all that" (referring to all my meds). Sometimes people tell me "That's so awesome that you are doing all that".... Well, I guess, but not really. I just do what the doctors tell me, I know its the best chance I have to living a longer fuller and better quality of life. Plus I have lot of help from Andrew, family, and friends! Right now the main thing I'm working on is: 1. Keeping my lungs at 56% (since my last appointment ) AND 2. following the dietary restrictions the GI specialist gave me (read about that appt here ) & I'm keeping my Food Journal for him to look at. Here's how that is going: Okay...  For the last 7 days I've had no meat in my diet. I really miss my meat and to be honest it didn't help a lot. This week starting today I'm no dairy for 7 days. Then I'm no meat and dairy... Then no gluten for a week. I go back to the specialist in 5 weeks. I...