Cheriz: My life with Cystic Fibrosis

My Big Doc Appointment: Okay, there is a lot to tell. So let's start with my working out & calorie counting. I know that sounds weird, but I forget to eat sometimes and like low calorie food. I don't care for greasy foods, sweets, or eating out. I'd rather have pickles, grapefruit, baked fish, and veggies at home.. Hence my problem. Low cal foods. So I count my calories. I have an app on my phone that helps me keep track and it subtracts what I have eaten from my goal. I set a goal at 3,000 a day. While I don't always make it to my goal, it sure beats the typical 800 calorie days I used to typically have... I also have been walking (with some jogging bits here and there) every single day my legs permit me. So since the 22nd I have done this for all except 2 days (where my legs were too sore). Those were my resting days. The last 3 days I have done a whole mile and I keep shaving time off. Today's mile was 15 minutes!!! Picture: As soon as we got home from...

 Who Doesn't LOVE the Summer: Summer is very much welcomed in our house! Andrew has more time off in the summer. I'm excited he graduates from college this December! Since the Fall of 2013 he has worked full-time while going to school full-time (35-45 hours at work & 12-15 credits per semester). This fall will be a little easier, he only has 2 classes & his Capstone Paper/project. However, he has been working on that this summer so he's ahead of the game. I've been enjoying spending more time with him this summer. Last night we walked down to the lake and had a picnic dinner. Had to find a shady spot so I didn't get sunburnt, I burn fairly fast from daily antibiotics & fair skin. We got to use one of our wedding shower presents. My mom got us a lawn blanket that zips up, along with the shadowbox, and other items. We love to going to the band concerts & activities in the park. So the lawn blanket will get lots of use. We packed it all up in a pic...

Gotta Keep Chugging: 2015 as year has been amazing, but also difficult at the same time. I love the achievements, happy memories, and celebrations that have or are happening. For example: I turned 30 years old in April. If you don't remember, check out the photo album from it on my CF Facebook page . We turned my birthday party into a Bowling CFF fundraisier, raising $400 for our Great Strides Walk! In June, I also hosted & organized Princeton's 2nd CF Walk (first official Great Strides Walk) and we raised over $22,000 for the CF Foundation. And of course, ANDREW & I ARE GETTING MARRIED in August!!! As promised here are a few more photos from our wedding shower- It was a beautiful shower, THANK YOU! It has been an amazing year!!!! But, it has its rough patches too. I've had lots of GastroIntestinal Issues, was on IV meds that I didn't respond too, was on steroids and over 11 nebulizers a day for a long time... And I only saw a slight increase in my...

Lots Happening: I'm still working on getting my weight and lung function back up. It's a slow and long process. I'm struggling in the 40s in lung function and still not 100 lbs. It's sooo frustrating, but eating more, doing small workouts, etc is getting easier. So hopefully, we will see a difference, all I can do is keep trying. Last Sunday was Andrew & I's wedding shower. It was simply beautiful and so much fun! My sister planned our shower, and a couple of our bridesmaids helped get everything put together. I didn't know much about it, she wanted to surprise us and boy, did she. I couldn't believe how pretty everything looked. All the tables were decorated with beautiful fresh flowers, table runners, china plates, party favors, etc. It was gorgeous! I didn't take any pictures, but a few others did, so more pictures will be in the next post, but here was a selfie I sent to an out-of-state bridesmaid.  The Showers colors were blue and yellow...

This Week: Well, this week started off really nice with the 4th of July, my mom & sister's Birthdays, etc. But a lot is going on right now! We are starting to finalize wedding stuff with the caterer & flowers, etc. Got almost 50% of RSVPS back, a few invites had to be re-sent out due to people moving, etc. But so far wedding stuff is going smoothly. My sister & a couple bridesmaids have been planning for our wedding shower this weekend. We decided to call it a wedding shower, instead of a bridal shower, because its for Andrew too. I think it is silly for him not to be there, the wedding isn't about me, it's about us.  He's looking forward to it too and I have been super impressed with my sister's mad organizing skills. She has been simply amazing and so far we haven't had to many bumps in the road with wedding planning. It takes organization, but its pretty much like planning a CF Walk or other event. Picutre: My sister & I One aspect of ...

July 2nd, What a Day: First, I must tell everyone that it's my mom's birthday! That's right my amazing mother is celebrating her birthday today. As you may know... I'm very much attached to my mother, probably too much. Not gonna lie. I call or text her at least 5 times a day. Judge me all you want. But she ain't you're stereotypical mom. She never tells me what to do, she never judges, she is more of a best friend than a parent at this point. Granted I still call her for an awesome casserole dish recipe, or advice on something I'm doing for the first time, for the most part, she is just someone I like to chat with and share lots with. Plus, she has been helping me with  wedding & CF walk stuff. Here is a post I wrote about my mom on Mother's Day that explains EXACTLY how amazing she is  right here ! SECONDLY, she got a pretty amazing Birthday present. Today is day that Vertex's Orkambi was FDA approval for patient use. What does this mean? W...