Skip to main content

A Bride with CF: Issues Part 3

Planning a Wedding:

I discussed a few other issues with wedding planning & getting married that pertained to Cystic Fibrosis. A MAJOR one being insurance coverage. I still can't wrap my head around the fact some people can't get married solely because of medical coverage. I wrote about that topic & biggest concerns right here.

Other issues are much smaller. Things like "can I fit my therapies & vest treatments in the day of the wedding" or "we need to plan to keep my enzymes at the head table, so I don't forget them" and then thinking about packing & traveling for the honeymoon with CF is a whole other can of worms.

We are going on a small mini-moon. Andrew can't get off too much time from work, traveling is hard on me, and after we pay for our wedding we would rather save for a home, future kids, or other bigger things in our life.

So there are many little details to think about with Cystic Fibrosis. This weekend we are doing a lot of the wedding finalization details. For example: We finalized the cake & did the tasting. We are going to get one of the flower girls fitted and her dress ordered, we paid the 2nd deposit on the venue, and we are checking in at Tuxedo shop. My bridesmaids have ordered their dresses (one even has received it already), we got our invitations ( I just have to finish them), and so far we have kept everything under budget or in budget! YAY!

I'm doing a lot of the wedding DIY (myself) and I'm really it helps to keep us coming in under budget!

Honestly, The guest list is the hardest part. I have 120 family members, and I have 40 kids under the age of 13 in my family. Add in Andrew's 35 family members and we are at 155. Plus 16 person bridal party, so 171. Our venue & wedding package allows 175 people. So it's tough. We've had to cut a lot of people (friends wise) we'd like to have there, and not many people are getting plus ones. But my family is just sooo large on both sides its nearly impossible.

Otherwise, I'm loving planning the wedding, I think it's been pretty straight forward. Andrew & I just discussed it, knew what we wanted, and starting planning it out. So far we haven't changed our minds or hesitated on anything. For example: I picked the style flower dresses, Andrew picked the color (which became our secondary color). We picked the venue, invitations, cake, food, together in a matter of minutes.

My parents are super excited! Mom's helping me find the decorations I want and dad's even been willing to do wedding shopping with us! haha!

We are trying to keep everything local and support smaller businesses. For example: our flowers, caterer, photographer, tuxedos, favors all supporting local artists or mom & pop type businesses. I love it!

So really it's all come together really well. I just have to figure out a detailed schedule of the Wedding Day and make sure all of my breathing treatments & vests fit into the day.  I need to figure out where I'll be staying before the wedding, since I live 1.5 hours away from the venue/ my hometown, I'll want to stay in Princeton a few days before the wedding to make sure it all runs smoothly. So I'll need to pack for all that, and make sure we don't forget any of my meds after the wedding when Andrew & I head out! Wouldn't that be horrible. We leave town without my therapy vest and head out for our mini-moon! I plan on making someone in charge of making sure everything is in my car & packed. Planning a wedding is no different then planning an event (like the CF Walk). Decide what you want, make the calls, budget, finalize, delegate, check up, done!

Oh AND As far as people saying "Oh you don't get to eat at your wedding"  I need those calories. considering most brides don't eat big breakfasts or lunches before the wedding. I will be eating my entire
plate before I mingle with guests. Good thing I eat fast!

Speaking of eating... side note: I think I'm gaining weight. I can tell by the way my clothes fit & I feel. So that's really good! My next appointment for CF is April 8th, so hopefully it goes well and I keep up with the good news from Doc! I'm getting put into a new clinical trial! Picture right: from a past clinical trial! 

Make sure you Like my CF awareness facebook page if you haven't. I announce the winner of the freebie on Monday! So hurry and like the page to be entered for a chance to win. :-)






Comments

Popular posts from this blog

5K. I could cry. Beyond Annoyed.

My 5K I paid my registartion fee weeks ago, have been training and I'm ready for the 5K. However, I didn't get to run my 5K today. Why? Because Cystic Fibrosis decided to one up me. I got my spots back friday, and they just got worse and worse. They look like this: They take over my feet, and sometimes my calves. I posted about this a few weeks ago. I had them during the last few performances of Hairspray. I call it the "Mummy disease" because when it happens my joints freeze up and I can't move. So the morning of my 5K I wake up and they are on my thighs...     and on my arms. This is the worst they have been in years. I took pictures to show Dr. B at my clinic on the 11th.  I'm just really bummed and upset about my weekend! I was supposed to run my first 5K!!!!! I then had a bags tournament in Peoria for the Dream Factory, and was then going to head to Champaign for Sat night- Monday! My friend Alex, reserved me a ticket for Ren...

Calling All Who Care!

     Please Read : Okay, so first off I want to say that this post is tough. It's tough to think about and write. However, it is extremely important and a huge topic in the CF Community, and is VERY NEAR AND DEAR to MY HEART!  First I want to ask you... What if I told you I needed a Transplant. That I needed to reach a certain weight, get my kindeys functioning better, get a higher pain tolerance, and get off a couple medications I take right now. What if I said I couldn't receive a 2nd chance at life unless I reached these goals and I raised a certain amount of money that seems impossible to raise. What if I had been in and out of the hospital off and on for the last year, with many surgeries, had multiple infections and my lung function dropped from 40s to the teens and now is slowly dropping still. What if I was starting to wonder if my decision to go through the grueling Transplant tests was worth it. What if I start to get down about my cf and wondering why ev...

A Hospital at Home

Coming home from the hospital takes a balance..... Wait.... Did I just say home from the hospital??? That's right!  I get to leave Wednesday the 18th, after 8 days in the hospital. It was a logistical thing. I have a super important court date on for "Shoes (our AMAZING foster son) soon." So Doc knew before he admitted me that I would be leaving by that day... So what does this mean for me and my health??? Well, I need to make sure I continue the same treatment schedule I would in the hospital. So 4 sets of nebs a day. 8am, noon, 4pm, 8pm. Which means I finish my course of IVs at home. I will be on IV's at least until 27th (so 1.5 weeks left). I came into the hospital on Tuesday the 10th, but we didn't realize until Friday the 13th that my Psuedomonas is resistant to all of the antibiotic options for IVs except one med. So on the 13th we switched to Avycaz, which is a newer, hard hitting antibiotic that was brought to market less than 3 years ago. We were hoping I...