Skip to main content

Day 12 of IV Antibiotics

Time for an Update:

Tuesday is my follow up appointment to see how these new IV meds are working. As you know Doc changed my IV meds out for different ones, because my first 7 days worth of Aztreonam & Tobra didn't do much and I still felt sick a week later (this was last tues). Well, he switched it up from Aztreonam (the med I usually do on IVs) to Piperacillin (which I haven't been on in since around 2010). Piperacillian is slightly related to another antibiotic that I'm allergic to, so he was hesitant. But, I told him I had done it before and was fine. And he knows we are running out of options for meds (I'm allergic to the 3 main antibiotics that CFers take for their psuedomonas).  Picture right: Some of the medical supplies I got.

And guess what.... I think its working. My energy is coming back, my coughs are actually getting better. I haven't used my rescue inhaler for a couple days, AND I can tell I'm on the right track.

So I did 7 days on the first two meds and another 7 days on the new meds. Normally my IV "tune ups" last 14 days. But considering not much happened the first week, Doc may add another week to be more aggressive.

Hey, if it means better lung function and me even healthier then I'm okay with it. We will have to see what happens on Tuesday at my appointment (which I'm stressing out over driving too). I HATE driving in snow, Andrew has to work, and I'm not very excited about it. But this appointment is important for him to see my current lung function to see if I need more meds or not. So I will deal with it.

And I got the Eclipse Balls on Friday, so now I'm not mixing and hanging my IV bags anymore and no need for an IV pole either. YAY! So my life got a littler easier. If you didn't see my Video in last post (scroll down to next post).

Pic left: My IV meds, Nebulizers, etc in our fridge.

Other big news: I will be officially getting some results with the Princeton Walk this week! If you're looking for an amazing way to help out and fight CF. Consider Joining our Walk on 6-27-15 (you can even be a virtual walker), or donate to one of our walkers!    Just CLICK HERE!

Also, as far as Wedding Talk... We got our Save-the- Dates the other day and will be sending them out shortly! We had to make some tough choices, but we have everything for the wedding figured out. Guest List, Venue, Music, etc....

I'm soooo glad that in the last 5 days these new IV meds have really helped! So happy that everything is finally getting back to normal. Whew. Well as normal as my "CF Life" can be. Now to start working out again (now that I have energy for it).  And hopefully my health will show a BIG increase on Tuesday at Docs and will continue to improve with working out, etc.

I can't wait to blog Tues/Wed with an Update!


Comments

Popular posts from this blog

Clinical Trial, lung function test, and Crohn's diease

Clinical Trial, Clinic Today:   Clinical Trial 9am: Today, I went back to Dr. B's office for the clinical trial evaluation and start of trial. My last evaluation was a mess and I was not too happy with it ( Read about the first trial evaluation mess here! ) Luckily, we doubled today with my CF Clinic. It was a long day 9am-2pm in the office. BUT, good news is I'M ON THE TRIAL! It's not a new drug. I'm just doing the two meds like I always have (unless I get the placebo). I love being a part of clinical trials! The thought of helping drugs be approved that can help our health or even get approved by insurance easier! In the past I did a Clinical Trial for enzymes (that was a horrible clinical trial). I had to collect my stool in buckets and mail it to the lab...EW. But, it was to help us digest food better. AND now I'm on Zenpep, which is a fairly new enzyme and it does wonders for me! I did clinical trials also for Pulmozyme and Tobi too! So excited to get involv...

How theatre helped me more than you can know!

Theatre and the balance of my life Every person with Cystic Fibrosis has to figure out to balance the medical with the social. For years I had no clue. Currently, I'm in a show Hairspray, its really fun and a show I've always wanted to do. I'm being smart, no matter the time I get home I still do my meds, I still find time to do my jogging/exercise everyday and I eat extra/do extra stomach feeding to make up for calories burned. I've been sharing about my CF with cast members, when I need to and even the director knows. I watch my energy/blood sugar. AND even while doing the show I'm at my highest weight in 10 years and on Thurs at clinic (CF appt) I will find out if my lung function has gone up (hoping for 60%). So no worries..  I learned from my mistakes though. In the past I was stupid. When I was cast in   Urinetown, at the University of Illinois, I kept pushing too much at rehearsal and then even went out with cast members some...

Starved Rock State Park

The fun way to get my exercise   :-) Sarah and I hiked at Starved Rock State Park today! I usually have to work or play practice, errands, or something. But I had nothing planned for this afternoon/evening! I asked Sarah if she wanted to go hiking at Starved Rock. We both are always prepared and packed bags with water, sunblock, and snacks. My bag also contained some bandaids (I'm lil accident prone) and of course my meds and inhaler (which I rarely ever use, even when I'm indeed needing it). We started by first heading into the trails towards Pontiac Canyon, then we walked over to the River Trail and enjoyed the veiw of the River. Once we  were almost to horsehoe bend we had to turn around (where it looks like I made a mistake with the higlighter). Which wasn't a mistake, we started to hear thunder and decided to head back towards the lodge. We had to back track probably .25 miles. But we took the hiking trails past 4 more canyon/spots...