Skip to main content

Traveling and Moving!

Moving Again!


So many exciting things have been happening lately. First off, It's now offically Great Strides Season and the Cf Walks have started for the year! My team's first walk site is in Champaign on May 3rd!

(pic: My first Walk Team in Champaign: Sarah, Stacey, Alex, and myself)

I'm so excited about this walk and seeing some friends from U of I. Right now, I only have 3-4 team members signed up for this walk. However, Alex ( the guy pictured above) lives in Champaign still and is throwing a fundraising/walker recruitment party the night before at a pizza place. He's suppyling the pizza (well I sent him the donation letter, so the restaurant could donate the pizza or give him a discount-since its tax deductable). Guests pay for their own drinks and are asked to donate to our walk team and/or join us the next day at the walk (suggested donation he's asking for is $10 a person). He just started inviting people last night. He invited quite a few and already 10 people are attending! So hopefully that number continues to rise. Very exciting to have a friend host their own fundraiser for CF! This exactly how walk teams grow, by having team members that are really active! I love it! I can't wait to go to Champagin May 2nd for the pizza fundraiser and do the walk the next day! We do have to rush back that day, because I work at 6pm that night. If anyone else wants to host a party/fundraiser message me for ideas. I can help you out! And to donate to the Champaign Walk : CLICK HERE to donate or join

Wish I was traveling home for Easter...
I  work this Easter 4-10pm and Andrew works Easter morning 3am-noon (He's helping the restaurant he works at make Easter Meals for the eldery to deliver for mobile meals). So we will be celebrating Easter in between our jobs from noon-3pm! Then Monday morning (the day after Easter) I have my diabetes test. So I'll have to fast from 8pm on, so since I work 4-10pm. My last meal will be lunch and then it will be a full 24 hours without food. UGH. It's not too bad, I've been in the hospital before with intestine problems that kept me from eating for weeks.

What other traveling news? Well, I have a 2nd CF Walk in Naperville on May 17th! I have 7 people walking at that site. And of course I have a CF still in Princeton and Peoria this year! if you want to read about my CF Walk in Princeton (READ ABOUT IT HERE) I'm so excited to have so many walk sites and people getting involved! We have over 50 people walking at the Princeton location and we are doing a fundraiser that night after the walk at Culvers too (Read about Culvers curing CF here) So I'm hoping all together we can raise $10,000 for a cure for CF!

Okay, okay, enough about traveling for the CF Walks. I'm sure your curious about the MOVING part! Well, as you know I packed up and moved to Bensenville in August of last year (Read about the big moving day and the school we attended HERE.)! Well, now I'm happy to announce I'll be moving to Sycamore, IL. I'll be living there, working at a local Family Video, etc while Andrew attends Northern University and works at the local Culvers as the Kitchen Supervisor. I'll be living in Sycamore, IL for at least 1.5 - 2 years. It is 40 mins closer to my hometown, I know a few more people around that area and it is a lot less Chicago-ish. Which is a major plus for me. I'm not a Chicago/burbs type girl.

I'll discuss why we are moving and give more details in the next blog. But for now, just wanted to share the news! And tell you that I'm very excited about all this traveling that is coming up. And safe travels for everyone visiting family, etc over Easter Weekend!

Comments

Popular posts from this blog

First blog: Hello

My first Blog: A little About Me I'm not sure why I have decided to start a blog, however, here I am.  I have honestly thought about writing about my life for years, but have always chickened out. I have finally decided to share the experiences life has thrown at me. The biggest reason I have been asked to blog by people is because of everything I have dealt with medically. I have Cystic Fibrosis and a few other medical problems...This is probably the best reason why I should blog. I can relate to others who are dealing with medical problems, however,my CF is also why I did not want to write this blog. CF can be embarssing and annoying sometimes... but it  has helped define who I have become to be as a person. Therefore, (yes, even though I want it cured) I don't hate having CF. Let me start off with some basic info and statements. I'm 26 yrs old and have dealt with CF all my life. In this blog you will hear recent stories (good, bad, embarassing); a...

Holding Down the Fort

My husband, Andrew, is currently at Wartburg Theological Seminary and is starting his first week of his second year there. Every year he lives on campus for one week. He enjoys starting each semester on campus where he can build friendships with other students and professors. It's the only time he is on campus. Usually he does long-distance learning, online, from home. It was the only way we could manage him doing a four year Master degree program while working. This week is the hardest for us. However, we have something on Thursday and Friday this week, so Andrew will only be gone 3 days instead of the typical full five. So that will make this week a bit easier than the other semesters. It's hard for Andrew to be away, although I know he is having a blast. We send random pictures back and forth like a book he may be reading or a game I may be playing with our kiddo. It is hard for the kid(s) to not see Andrew every day. We are foster parents and stability is a BIG issue for ...

Close to a Cure?!?!?! and Thank You!!!!!!!!

Help Us Find A Cure & Thank you! Lots of new meds and treatments are being researched thanks to the CF Foundation and the people who support it! Thank you soooo much everyone for supporting me and the CF GreatStrides Walks! I hope you enjoy hearing about the cool new ways steps are being taken towards finding a cure for CF and how everyone has helped me and us (the cf community)! New Treatments And Break Throughs: As you may know, from reading my last couple blogs. Some exciting news was released!  VX-809 + Kayldeco Phase 3 (6 month clinical trials) has started! Which means if all goes well, this could be on the market in the next year or two. This drug helps target the actual faulty gene. It will help improve our lung function (hopefully gain some back, the part that isn't damaged) and will help us to slow the decline of our lungs health tremendously! This is the treatment for my mutations!To read more about this new treatment click Here! Also, there are other medic...