Skip to main content

Traveling and Moving!

Moving Again!


So many exciting things have been happening lately. First off, It's now offically Great Strides Season and the Cf Walks have started for the year! My team's first walk site is in Champaign on May 3rd!

(pic: My first Walk Team in Champaign: Sarah, Stacey, Alex, and myself)

I'm so excited about this walk and seeing some friends from U of I. Right now, I only have 3-4 team members signed up for this walk. However, Alex ( the guy pictured above) lives in Champaign still and is throwing a fundraising/walker recruitment party the night before at a pizza place. He's suppyling the pizza (well I sent him the donation letter, so the restaurant could donate the pizza or give him a discount-since its tax deductable). Guests pay for their own drinks and are asked to donate to our walk team and/or join us the next day at the walk (suggested donation he's asking for is $10 a person). He just started inviting people last night. He invited quite a few and already 10 people are attending! So hopefully that number continues to rise. Very exciting to have a friend host their own fundraiser for CF! This exactly how walk teams grow, by having team members that are really active! I love it! I can't wait to go to Champagin May 2nd for the pizza fundraiser and do the walk the next day! We do have to rush back that day, because I work at 6pm that night. If anyone else wants to host a party/fundraiser message me for ideas. I can help you out! And to donate to the Champaign Walk : CLICK HERE to donate or join

Wish I was traveling home for Easter...
I  work this Easter 4-10pm and Andrew works Easter morning 3am-noon (He's helping the restaurant he works at make Easter Meals for the eldery to deliver for mobile meals). So we will be celebrating Easter in between our jobs from noon-3pm! Then Monday morning (the day after Easter) I have my diabetes test. So I'll have to fast from 8pm on, so since I work 4-10pm. My last meal will be lunch and then it will be a full 24 hours without food. UGH. It's not too bad, I've been in the hospital before with intestine problems that kept me from eating for weeks.

What other traveling news? Well, I have a 2nd CF Walk in Naperville on May 17th! I have 7 people walking at that site. And of course I have a CF still in Princeton and Peoria this year! if you want to read about my CF Walk in Princeton (READ ABOUT IT HERE) I'm so excited to have so many walk sites and people getting involved! We have over 50 people walking at the Princeton location and we are doing a fundraiser that night after the walk at Culvers too (Read about Culvers curing CF here) So I'm hoping all together we can raise $10,000 for a cure for CF!

Okay, okay, enough about traveling for the CF Walks. I'm sure your curious about the MOVING part! Well, as you know I packed up and moved to Bensenville in August of last year (Read about the big moving day and the school we attended HERE.)! Well, now I'm happy to announce I'll be moving to Sycamore, IL. I'll be living there, working at a local Family Video, etc while Andrew attends Northern University and works at the local Culvers as the Kitchen Supervisor. I'll be living in Sycamore, IL for at least 1.5 - 2 years. It is 40 mins closer to my hometown, I know a few more people around that area and it is a lot less Chicago-ish. Which is a major plus for me. I'm not a Chicago/burbs type girl.

I'll discuss why we are moving and give more details in the next blog. But for now, just wanted to share the news! And tell you that I'm very excited about all this traveling that is coming up. And safe travels for everyone visiting family, etc over Easter Weekend!

Comments

Popular posts from this blog

Clinical Trial, lung function test, and Crohn's diease

Clinical Trial, Clinic Today:   Clinical Trial 9am: Today, I went back to Dr. B's office for the clinical trial evaluation and start of trial. My last evaluation was a mess and I was not too happy with it ( Read about the first trial evaluation mess here! ) Luckily, we doubled today with my CF Clinic. It was a long day 9am-2pm in the office. BUT, good news is I'M ON THE TRIAL! It's not a new drug. I'm just doing the two meds like I always have (unless I get the placebo). I love being a part of clinical trials! The thought of helping drugs be approved that can help our health or even get approved by insurance easier! In the past I did a Clinical Trial for enzymes (that was a horrible clinical trial). I had to collect my stool in buckets and mail it to the lab...EW. But, it was to help us digest food better. AND now I'm on Zenpep, which is a fairly new enzyme and it does wonders for me! I did clinical trials also for Pulmozyme and Tobi too! So excited to get involv...

How theatre helped me more than you can know!

Theatre and the balance of my life Every person with Cystic Fibrosis has to figure out to balance the medical with the social. For years I had no clue. Currently, I'm in a show Hairspray, its really fun and a show I've always wanted to do. I'm being smart, no matter the time I get home I still do my meds, I still find time to do my jogging/exercise everyday and I eat extra/do extra stomach feeding to make up for calories burned. I've been sharing about my CF with cast members, when I need to and even the director knows. I watch my energy/blood sugar. AND even while doing the show I'm at my highest weight in 10 years and on Thurs at clinic (CF appt) I will find out if my lung function has gone up (hoping for 60%). So no worries..  I learned from my mistakes though. In the past I was stupid. When I was cast in   Urinetown, at the University of Illinois, I kept pushing too much at rehearsal and then even went out with cast members some...

Starved Rock State Park

The fun way to get my exercise   :-) Sarah and I hiked at Starved Rock State Park today! I usually have to work or play practice, errands, or something. But I had nothing planned for this afternoon/evening! I asked Sarah if she wanted to go hiking at Starved Rock. We both are always prepared and packed bags with water, sunblock, and snacks. My bag also contained some bandaids (I'm lil accident prone) and of course my meds and inhaler (which I rarely ever use, even when I'm indeed needing it). We started by first heading into the trails towards Pontiac Canyon, then we walked over to the River Trail and enjoyed the veiw of the River. Once we  were almost to horsehoe bend we had to turn around (where it looks like I made a mistake with the higlighter). Which wasn't a mistake, we started to hear thunder and decided to head back towards the lodge. We had to back track probably .25 miles. But we took the hiking trails past 4 more canyon/spots...