Skip to main content

First Wknd Home- Fall Fun

First Weekend Home: Fall Fun:

This is the first weekend since I've been home from the hospital. Andrew had Fri Night- Sunday afternoon off. So Andrew and I decided to celebrate the fall season!

We decided to get our pumpkins, and Andrew even made us an apple pie- It was delicious!

(doesn't that look yummy)

 Andrew's Mom had the weekend off, so she came to visit on Saturday. Once Cindi arrived we went to an orchard, got some kettle corn, pumpkin spice, and caramel corn. We got a couple taffy apples too! The orchard was really nice, they had a carnvial, petting zoo, camel and pony rides, a sweets shop, pumpkin patch, corn maze and lots of other stuff. We took a lot of silly photos.... (Here we are as two peppers, we are some "hot stuff"-- just kidding)


After the Orchard we went out to Dinner with some of our friends. We were celebrating Jake's Birthday :-) We went to Weber Grill!  It was very delicous. And I just had to get our pic by the enormous grill they have out front.

I had BBQ- I scarfed down 3 large pieces of brisket, 2  full sausage links, side of mac-n-cheese, side of baked beans, AND ate half of Andrew's pulled pork, had one of his bbq ribs, 5 rolls with butter, and I even went through a whole dessert.

My appetite has been crazy since I was put on the steriods. I hope once I'm done with Prednisone, I keep my apetite and therefore, my weight up. I keep gaining weight too! Last night I was 108.8 lbs. CrAzY!

We had a great time out and it was nice to actually go out! (of course, we had to plan around my meds, and did one of my IV meds on the way to the orchard. But, it worked perfectly. It was exactly what I needed! A day to forget about the meds ( I didn't forget them though, I did them...) where I could focus on having fun!

I'm excited to go back to classes on Monday, I hope to figure out what will happen with my internship. I'm too far behind in it, to catch up. So I may have to re-start an internship in Jan and go through the summer. I was hoping to have the summer off, but that is okay. I did give my notice to Family Video. I really want to focus on gaining weight and bringing my lung function up more. Andrew and I figured out everything financially. Between my income and his, I don't need the family video job on top of everything. So we are going to seriously work on getting me in the best health I can be.

We'll see what my post-hospital/Clinic on Friday will bring! And I will post pics of our pumpkins once they are fully finished too!

Comments

  1. I'm so glad to hear you're feeling better & proud of your for your awesome weight gain - hope it sticks! I think you're making a smart choice leaving one of your jobs. And, have I mentioned how lucky you are to have an awesome guy like, Andrew?! :)

    ReplyDelete
    Replies
    1. Yeah, I'm definetly feeling better. Just need to stick to the routine of all the meds :-) He's pretty amazing. We're lucky girls to have such great guys. Also, I'm anxious to see what happens Friday at my appt! And looking forward to the CF climb!

      Delete

Post a Comment

Popular posts from this blog

5K. I could cry. Beyond Annoyed.

My 5K I paid my registartion fee weeks ago, have been training and I'm ready for the 5K. However, I didn't get to run my 5K today. Why? Because Cystic Fibrosis decided to one up me. I got my spots back friday, and they just got worse and worse. They look like this: They take over my feet, and sometimes my calves. I posted about this a few weeks ago. I had them during the last few performances of Hairspray. I call it the "Mummy disease" because when it happens my joints freeze up and I can't move. So the morning of my 5K I wake up and they are on my thighs...     and on my arms. This is the worst they have been in years. I took pictures to show Dr. B at my clinic on the 11th.  I'm just really bummed and upset about my weekend! I was supposed to run my first 5K!!!!! I then had a bags tournament in Peoria for the Dream Factory, and was then going to head to Champaign for Sat night- Monday! My friend Alex, reserved me a ticket for Ren...

Calling All Who Care!

     Please Read : Okay, so first off I want to say that this post is tough. It's tough to think about and write. However, it is extremely important and a huge topic in the CF Community, and is VERY NEAR AND DEAR to MY HEART!  First I want to ask you... What if I told you I needed a Transplant. That I needed to reach a certain weight, get my kindeys functioning better, get a higher pain tolerance, and get off a couple medications I take right now. What if I said I couldn't receive a 2nd chance at life unless I reached these goals and I raised a certain amount of money that seems impossible to raise. What if I had been in and out of the hospital off and on for the last year, with many surgeries, had multiple infections and my lung function dropped from 40s to the teens and now is slowly dropping still. What if I was starting to wonder if my decision to go through the grueling Transplant tests was worth it. What if I start to get down about my cf and wondering why ev...

A Hospital at Home

Coming home from the hospital takes a balance..... Wait.... Did I just say home from the hospital??? That's right!  I get to leave Wednesday the 18th, after 8 days in the hospital. It was a logistical thing. I have a super important court date on for "Shoes (our AMAZING foster son) soon." So Doc knew before he admitted me that I would be leaving by that day... So what does this mean for me and my health??? Well, I need to make sure I continue the same treatment schedule I would in the hospital. So 4 sets of nebs a day. 8am, noon, 4pm, 8pm. Which means I finish my course of IVs at home. I will be on IV's at least until 27th (so 1.5 weeks left). I came into the hospital on Tuesday the 10th, but we didn't realize until Friday the 13th that my Psuedomonas is resistant to all of the antibiotic options for IVs except one med. So on the 13th we switched to Avycaz, which is a newer, hard hitting antibiotic that was brought to market less than 3 years ago. We were hoping I...