Skip to main content

All the New Things.

All the New Things:

Since my surgery on June 4th I haven't had a stomach feeding pump and unfortunately my weight took a hit. I'm stuck at 90 lbs. I've gotten my new insurance and my new pharmacy to work together and I should be receiving my NEW pump next week. I will have to start off slow (not doing all 4 cans a night) to get my stomach used to it again. And it will be hard considering I get off work some nights at midnight then go back to work the next morning at my 2nd job. But if I speed it up at night I should be able to do all four cans and 1,250 calories during the night.

The upsetting part is more that I can't gain the weight without the feeding. I always had the goal of getting rid of my stomach tube. I wanted it to be before I was 30. Well, I now have realized in the last month dropping 10 lbs. that its not gonna happen. Its going to be a permanent part of me.

Also, new... I have been working a new 2nd job to save money so Andrew and I can move to Chicago for school! If I can afford it I will be working on my Masters in Social Work, while working part time in real estate and part time as a server or something. I really hope we can save the money and it works out! I'd love to go to Grad School this fall :-) Otherwise I can work for a year and then go next year.

Another new thing, I'm going to Florida at the end of this month! One of my best friends lives there and she helped me get a plane ticket to come for week, then she is moving back to Illinois at the end of the week and I'm keeping her company for the drive. Considering I get car sick it could be interesting...lol (I just get headaches, not like throw up car sick.) However thanks to CF I could always throw up too... lol Always keepin it exciting. I'm super excited to see her and spend the week in Florida, but I'm nervous flying by myself again. I hate flying by myself. I have a two hour lay over in Georgia and will be bored out of my mind, but it will be worth it once I'm there!

I'm also starting to talk long walks with my friend Sarah again. I'm gonna work my way back up to jogging since my surgery, since I'm still having a few issues with my mesh (that's in me). So back on the road to recovery once again. YAY!

Hope everyone had a Happy 4th of July!

I wasn't feeling the best, so we opted not to do the fireworks and are going this weekend (since we both have the same night off :-) yay)! Instead we rented some movies and Andrew made us hamburgers and pasta for dinner. Halfway through the movies I mentioned soda pop sounded good. He pauses the movie and off we drove to Wal-Mart to buy root beer and ice cream! Root beer floats, movies, and a night off of work to spend with Andrew = a GREAT 4th of July. I'm one very lucky lady to have such an amazing guy in my life! I love him very much!



Labels:

Comments

Post a Comment

Popular posts from this blog

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...
2 comments
Read more

Video Blog: Life in the hospital (as a child)

The daily life in the hospital! Most people cringe at the idea of a hospital. However, when I was little I never minded going into the hospital. I usually would have at least one other friend with Cystic Fibrosis to hang out with there (before we knew about the "CF Bugs"). I didn't love being sick, but I loved my CF friends that I would hang out with. Also the hospital, nurses, and my parent's tried to make it a "normal" environment. I got up and put on cute clothes, "walked to school", flirted with a couple CF boys, did homework, came "home" (back to my room), my friends would ask my parent if I could go play with them. We'd hang out in the play room or go on a walk with one of my parents! My dad loved taking me on walks and I LOVED going on our walks! Here is a video blog of the route we took and bit of information on what is was like growing up (for a chunks at a time) in the hospital! (it is posted via youtube, let is dow...
3 comments
Read more

Laura/Lara- two amazing gals

Laura and Lara Today, was a pretty normal day. Work, Meds, Jog, Blog. Instead of jogging, we walked 2.5 miles. (which I recorded in my spreadsheet and I will be doing data analysis later using all the variables I can come up with...) But here is the more EXCITING part of my day: I was asked a week ago to be a guestblogger for  Lara's Blog . She is climbing  Mt. Kilimanjaro to raise awareness & funds for CF in memory of her best friend Emma! I hope everyone goes to her blog and wishes her good luck! She posted my introduction and guestblog today!!! So check it out  Right HERE! Lara, Thank you for your hard work and dedication to helping find a cure for CF! AND then there is Laura ( a different Laura), she is my best friend. Laura has CF too (we met when we were really young)!!! I know she has been going through a tough time. But she is the one who got me invovled in CF awareness! My first CF fundriaser was in 2008 at a CF Walk that Laura to...
1 comment
Read more