Skip to main content

2013: The CF Walk & update!

CF Walk 2013 HollowayVille:

The CF walk went amazing! I had a team of 32 people and we raised around $3,000 for the Cf Foundation! The walk was at a location pretty close to my hometown, which worked well for my family and friends! I had so much fun and feel so lucky to have so many people who care about me and what happens with research for Cystic Fibrosis.








Surgery:

I'm all scheduled to have my surgery tomorrow. It has been cancelled twice since March due to my getting sick or having medical problems come up. And once again, I now have some sores in my mouth and on my lips(just like I did when I got that virus/thrush in March). So I'm pretty sure they won't be operating on me tomorrow. I called Dr. Boas and now I'm just waiting for a response. I'm not sure what they will want me to do. As long as it doesn't get worse I shouldn't have to be hospitalized. He will probably order some meds for me and we will see what happens!

I'm so bummed, I really just want this surgery to be done with, what horrible luck. If the surgery was done I could recover and be back to my old dancing/jogging self. Its hard not to lift heavy objects, run around, or dance. I want to work on my lung function and overall health, its hard to do I'm limited with activity, etc.

So I will just wait and see what happens. I can't take off more time from work this summer. I will probably end up pushing it off until this Fall. Frustrating.

I have been doing all my meds though, and will continue to keep up with them. I made the promise:

As of right now, I owe all meds through Sept 28th. If my Team's final amount does reach $3,000 then I will owe all meds through November 7th!
So thanks to everyone donating I will hopefully be one very healthy girl soon! :-) Love <3

I will blog some updates on surgery and final amount raised tomorrow.

Comments

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...

Updates!

 Hey everyone! Sorry it’s been a while. Covid struggles have been all around and we have been focusing our on our kiddo and current life situations (jobs, home, everything really). We have been posting regularly on the Facebook page (www.facebook.com/CherizCFPage). We will keep you updated on there for now,  because we are doing some big changes to our current blog! Stay tuned!  In meantime, message our FB page if you need anything. Keep safe and stay happy.  We will be back. Promise! 

Beginning of the Year Troubles

Normal "beginning of the year" troubles for Andrew and I only really consist of one topic: Our Deductible [please no Obama, or government bashing] I've always had high deductibles ALL MY LIFE (no matter who was president). The problem is I hit my deductible within the first week of January. In the past I have always prepared for this and since I was still on my father's insurance (up until last year) he typically paid the bill (at least for medical stuff). And in the future Andrew & I won't have such an issue with this. We will be able to save and plan ahead for the $3,000 (for my deductible, his is another $3,000). However, this year was more difficult. We saved all 2013-2014 for our wedding & honeymoon, plus had our deductible saved too. But Real Estate was a pricey career to start, I've put almost $5,000 into it (classes, dues, licensing, exam, advertising, etc). So needless to say our deductible disappeared, thanks to my new career. Wh...