Skip to main content

Crazy week, but a friend got new lungs, yay!

Rashes, Scrapes The Play, and Got Some GOOD News Today:


My days have been soo random and roller coaster-ish lately. Which is fine, it keeps life interesting, and have ups and downs everyday is a lot better than just having plain ol bad days.

But for example the other night, I aced my exam (good), enjoyed play practice, found our a friend was admitted for CF problems, and I started having my allergic reaction to the med I'm on. This was within a couple hours of each other. It was crazy.

And today, I worked at both jobs and made pretty good tips! Which was awesome. However, I do look like a weirdo cuz i have a rash that keeps appearing. Which I think I have figured out what I'm allergic to, I started a couple new pills 2 weeks ago, so Dr. B and I will discuss it Monday over the phone and all will be well.. (my legs were pure spots/rash, sorry bad picture!)

And I lost my balance tonight and  I fell stepping down into my garage (2 steps, yep, lame). Landed with the step in my back and of course I try to catch myself. Bad Idea, I scraped my arm up... I'm so glad for the play I wear long sleeves and no shorts. Otherwise I'd be in full body make-up!

I'm very excited about the play being next weekend! Its a great cast, its a small cast of like 6 people, but it has been a lot of fun!

BUT THEN I get home, log into Facebook to find out my Cyster (friend I met online with CF), Alyssa has received her new lungs and is stable in the ICU! She has been patiently waiting for new lungs, I'm excited for her to get this 2nd chance! I hope and pray she continues to recover well and fast! Seriously, seeing the update online made my night :-)

How exciting for her, her family and friends!

Tomorrow night we start tech week for the show! Hope to see some family and friends there either (Wed- Family Night), or one of the nights it performs (Fri-Sun)! This week is going to be a lot of fun! <3

And in a couple weeks my arthritis [note: the appointment went well, but they have to rule out all other diseases/causes first. so willl let you know when I do] will start to be figured out, my surgery will be over, my exams will be over, one play will be done with, and life will become a lot simpler. OOOOH and I'm signing up for another 5K in June! Keep you posted on that! :-)






Comments

Popular posts from this blog

Updates!

 Hey everyone! Sorry it’s been a while. Covid struggles have been all around and we have been focusing our on our kiddo and current life situations (jobs, home, everything really). We have been posting regularly on the Facebook page (www.facebook.com/CherizCFPage). We will keep you updated on there for now,  because we are doing some big changes to our current blog! Stay tuned!  In meantime, message our FB page if you need anything. Keep safe and stay happy.  We will be back. Promise! 

Updates Galore!

Big News, Big Times, Big Change: I had my post hospital Doctor's appointment on April 21st and it went well. I posted a video on my CF facebook page. My weight is back on track, heading up. Also, my lung function was around 55%, so that's almost my baseline. I got to take my needle out that night. OH BOY!! I loved being needle free! Whoohoo no more IVs!!!!! In the last week I have been super busy with a few different things. 1. Work. I have a new client AND I had all my post licensing webinars & exams this last week! 2. More CF Foundation Volunteer work. I held a presentation in my home town, where I discussed CF, the different mutations & severity of classes, as well as fundraising for great strides. I talked about the history of the CF foundation, care centers, and more about our local IL CF fundraisers. Overall, it wasn't a big turn out, so I was a little bummed. My hometown has always supported my CF cause, so it was disappointing not to have a good numb...

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...