Skip to main content

Crazy week, but a friend got new lungs, yay!

Rashes, Scrapes The Play, and Got Some GOOD News Today:


My days have been soo random and roller coaster-ish lately. Which is fine, it keeps life interesting, and have ups and downs everyday is a lot better than just having plain ol bad days.

But for example the other night, I aced my exam (good), enjoyed play practice, found our a friend was admitted for CF problems, and I started having my allergic reaction to the med I'm on. This was within a couple hours of each other. It was crazy.

And today, I worked at both jobs and made pretty good tips! Which was awesome. However, I do look like a weirdo cuz i have a rash that keeps appearing. Which I think I have figured out what I'm allergic to, I started a couple new pills 2 weeks ago, so Dr. B and I will discuss it Monday over the phone and all will be well.. (my legs were pure spots/rash, sorry bad picture!)

And I lost my balance tonight and  I fell stepping down into my garage (2 steps, yep, lame). Landed with the step in my back and of course I try to catch myself. Bad Idea, I scraped my arm up... I'm so glad for the play I wear long sleeves and no shorts. Otherwise I'd be in full body make-up!

I'm very excited about the play being next weekend! Its a great cast, its a small cast of like 6 people, but it has been a lot of fun!

BUT THEN I get home, log into Facebook to find out my Cyster (friend I met online with CF), Alyssa has received her new lungs and is stable in the ICU! She has been patiently waiting for new lungs, I'm excited for her to get this 2nd chance! I hope and pray she continues to recover well and fast! Seriously, seeing the update online made my night :-)

How exciting for her, her family and friends!

Tomorrow night we start tech week for the show! Hope to see some family and friends there either (Wed- Family Night), or one of the nights it performs (Fri-Sun)! This week is going to be a lot of fun! <3

And in a couple weeks my arthritis [note: the appointment went well, but they have to rule out all other diseases/causes first. so willl let you know when I do] will start to be figured out, my surgery will be over, my exams will be over, one play will be done with, and life will become a lot simpler. OOOOH and I'm signing up for another 5K in June! Keep you posted on that! :-)






Labels:

Comments

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...
18 comments
Read more

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...
2 comments
Read more

Calling All Who Care!

     Please Read : Okay, so first off I want to say that this post is tough. It's tough to think about and write. However, it is extremely important and a huge topic in the CF Community, and is VERY NEAR AND DEAR to MY HEART!  First I want to ask you... What if I told you I needed a Transplant. That I needed to reach a certain weight, get my kindeys functioning better, get a higher pain tolerance, and get off a couple medications I take right now. What if I said I couldn't receive a 2nd chance at life unless I reached these goals and I raised a certain amount of money that seems impossible to raise. What if I had been in and out of the hospital off and on for the last year, with many surgeries, had multiple infections and my lung function dropped from 40s to the teens and now is slowly dropping still. What if I was starting to wonder if my decision to go through the grueling Transplant tests was worth it. What if I start to get down about my cf and wondering why ev...
8 comments
Read more