Skip to main content

Crazy week, but a friend got new lungs, yay!

Rashes, Scrapes The Play, and Got Some GOOD News Today:


My days have been soo random and roller coaster-ish lately. Which is fine, it keeps life interesting, and have ups and downs everyday is a lot better than just having plain ol bad days.

But for example the other night, I aced my exam (good), enjoyed play practice, found our a friend was admitted for CF problems, and I started having my allergic reaction to the med I'm on. This was within a couple hours of each other. It was crazy.

And today, I worked at both jobs and made pretty good tips! Which was awesome. However, I do look like a weirdo cuz i have a rash that keeps appearing. Which I think I have figured out what I'm allergic to, I started a couple new pills 2 weeks ago, so Dr. B and I will discuss it Monday over the phone and all will be well.. (my legs were pure spots/rash, sorry bad picture!)

And I lost my balance tonight and  I fell stepping down into my garage (2 steps, yep, lame). Landed with the step in my back and of course I try to catch myself. Bad Idea, I scraped my arm up... I'm so glad for the play I wear long sleeves and no shorts. Otherwise I'd be in full body make-up!

I'm very excited about the play being next weekend! Its a great cast, its a small cast of like 6 people, but it has been a lot of fun!

BUT THEN I get home, log into Facebook to find out my Cyster (friend I met online with CF), Alyssa has received her new lungs and is stable in the ICU! She has been patiently waiting for new lungs, I'm excited for her to get this 2nd chance! I hope and pray she continues to recover well and fast! Seriously, seeing the update online made my night :-)

How exciting for her, her family and friends!

Tomorrow night we start tech week for the show! Hope to see some family and friends there either (Wed- Family Night), or one of the nights it performs (Fri-Sun)! This week is going to be a lot of fun! <3

And in a couple weeks my arthritis [note: the appointment went well, but they have to rule out all other diseases/causes first. so willl let you know when I do] will start to be figured out, my surgery will be over, my exams will be over, one play will be done with, and life will become a lot simpler. OOOOH and I'm signing up for another 5K in June! Keep you posted on that! :-)






Comments

Popular posts from this blog

5K. I could cry. Beyond Annoyed.

My 5K I paid my registartion fee weeks ago, have been training and I'm ready for the 5K. However, I didn't get to run my 5K today. Why? Because Cystic Fibrosis decided to one up me. I got my spots back friday, and they just got worse and worse. They look like this: They take over my feet, and sometimes my calves. I posted about this a few weeks ago. I had them during the last few performances of Hairspray. I call it the "Mummy disease" because when it happens my joints freeze up and I can't move. So the morning of my 5K I wake up and they are on my thighs...     and on my arms. This is the worst they have been in years. I took pictures to show Dr. B at my clinic on the 11th.  I'm just really bummed and upset about my weekend! I was supposed to run my first 5K!!!!! I then had a bags tournament in Peoria for the Dream Factory, and was then going to head to Champaign for Sat night- Monday! My friend Alex, reserved me a ticket for Ren...

My Dad Deserves More Than 1 Day!

Happy Fathers' Day to ALL the Fathers out there! I wanted to post a list to why I'm sooo thankful for my dad (its faster, bit more fun, and I gotta get ready for my Dad's Cookout still)!!! Top 15 (10 isn't enough..lol) reasons Dad should get more than a day of celebration: 15. He loves meeting people, making friends, and is quite social. 14. When something goes wrong, he is the person that can say the right thing to make me smile :-) 13. Is always honest. 12. Few yrs ago, he gave me HIS car, (so i could get back and forth to work/play practices) He rode his bike to work and back (he enjoys it too tho) 11. Best Sense of Humor! 10. He never complains, ever! 9. Growing up my Dad worked 6am-3pm at one job and 4:30-10pm at another. 8. Dad still managed to go to 99.9% of my performances 7. He is the least judgemental person ever, he talks to & helps everyone! 6. He is a pro at making doctors, insurance companies, & hospitals do ...

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...