Skip to main content

Cancelled surgery and seizures

Craziness

 My surgery got cancelled. My Dr. didn't clear me for it. Bummerz So I'm gonna have to push it back til summer. I can't afford  to miss another two weeks of classes and work right now anyway. 

I would have loved to get it done with. And my waitressing and dancing in the play will make it worse over time. So that's :-( But it will be fine until classes are over and then I will try scheduling it again.

Plus side: My sister will be home in the summer, so she can stay with me if I need her to.up having a Planet of the Apes Marathon is awesome! She is a Music Teacher at a private Catholic School and teaches Elementary Music PreK- 8th, Choir and Band!  Side Note: I won't miss classes, or more rehearsals. If I had it this week I prolly would still be not 100% by my birthday. AND I have more time to get my weight and lung function up before then.

 OTHER craziness:

I've been having more of my seizure things. I  have two types: 1. sometimes I'm just really slow- motion, like it takes me a while to connect what people are saying, etc. I feel tired and shaky and my breathing is shallow.  Type 2. The worse kind. Never last more than a few minutes, I think. I'm not sure. I go completely numb. I sometimes shake, I think cuz I'm not breathing well. Sometimes I forget to breath and then I gasp, Sometimes I can talk, If they are really bad I can't talk ( i have spoken gibberish before). Since I go numb, I get confused to where I am, if I'm alone. My eyesight gets weird. I feel like I'm not in my body almost. So I freak out. I hate being alone when it happens, but I feel bad when I'm with someone. There isn't much anyone can do for me, except remind me to take deep breaths.

The Neurologist said a couple years ago that they were due to mostly lack of oxygen, prolly mixed with lack of sleep and calories. He thinks its my body's way of warning me I'm in crash mode. So bottom line, there wasn't much he said besides "do what I should" and then he took my license away for 6 months.

So I'm not sure if I want to go back. BUT... If I keep having them, I will. Cuz after I have them I crash and sleep and don't feel well the rest of the day. I can't have a headache and sleep all day after having them. Besides, if I do that, then I'm not eating or doing all my meds too and that makes it worse... what a cycle.

However, I just got out of the hospital and then I went right back to classes and didn't really take it easy. So maybe that in a combination with the fact I have been coughing more (AKA: my lungs are crappy, maybe I'm lil sick ) could have triggered the series of seizures the past two days.

So we'll see what happens. I'm doing everything I need to today. Hopefully, they disappear. If not I'm not on my work schedules this week, I could make an appt.  Keep ya posted!

Oh and I excitingly got to see some of my friends this weekend for the FIRST time since getting sick two weeks ago! We saw a play, sang some karaoke, and went out for food! Good stuff :-)

Comments

  1. I'm glad you are I wouldn't know what I would do without you love Laura B :)

    ReplyDelete

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...

Beginning of the Year Troubles

Normal "beginning of the year" troubles for Andrew and I only really consist of one topic: Our Deductible [please no Obama, or government bashing] I've always had high deductibles ALL MY LIFE (no matter who was president). The problem is I hit my deductible within the first week of January. In the past I have always prepared for this and since I was still on my father's insurance (up until last year) he typically paid the bill (at least for medical stuff). And in the future Andrew & I won't have such an issue with this. We will be able to save and plan ahead for the $3,000 (for my deductible, his is another $3,000). However, this year was more difficult. We saved all 2013-2014 for our wedding & honeymoon, plus had our deductible saved too. But Real Estate was a pricey career to start, I've put almost $5,000 into it (classes, dues, licensing, exam, advertising, etc). So needless to say our deductible disappeared, thanks to my new career. Wh...

Orkambi & the Hospital

I haven't really felt up to blogging or doing anything since I got sick. I have been having a few breathing problems and more asthma attacks the last two weeks. I had my regular Cystic Fibrosis Clinic check up on Tuesday of last week. I knew it wouldn't be great, but I had no idea how bad it really was... At clinic we found out my lung function dropped majorly from my "baseline" of 58% to around 38%.  My Respiratory therapist responded "Dang, that's transplant range, we gotta get those numbers up." It's scary to think one sickness, one medication and my lung function can go from 58% to 30s. Where I struggle to breathe and could be listed for a transplant. But I have faith, hope, and trust. This is why. My doctor(s) at the CF Center are very proactive! My doctor told me I had a couple options: 1. be admitted 2. Stop Orkambi 3. Keep doing Orkambi, but switch up some of my meds at home and call in a few days for update Of course... I decided...