Skip to main content

New Purple Vest, Insurance and all that Jazz

And All that Jaaaaaazzzzzz...

It's getting close to my appointment with the Rheumatologist! Very excited to get this figured out and find the right meds! Also, right now I'm on anitbiotics ( not IV, just oral) and prednisone. My lungs have been pretty crappy lately, so hopefully this round of meds will boost them back up!

My weight has been going up though, since my Boyfriend has been cooking me a lot of meals lately (ps. he is amazing cook)! Sure beats my grab a granola bar on the go meals.

Also, good news! I got a new vest, foot pump, and tubes (not a new machine)... Bummer, but at least I got it fixed, so I can use it again! I got the purple vest (my favorite color)! And the cool thing is the new vests are washable! (Picture of: Me in my new purple vest, the old honking machine w/new parts, plus a picture I need to hang, a shoe rack I need to out together, and a black dress that is currently drying...haha sorry bout the mess!)The new machine would have been nice, its half the size and weight. The current one I own is 35 lbs. So I can't take it on traveling...The new machine comes with a traveling case and everything. But $16,000 is too much the insurance is saying... ok..I'll give you that one.

BUT...they are denying my Nebulizer treatment TOBI too, cuz it is around $6,000 a month. They say there is no proof that alternating between TOBI and Cayston every other month helps. But Dr. B says it does. It helps our bodies not build up resistance the one anitbiotic or the other. Keeps those CF bugs on their toes!

So, he is duking it out with them right now, and I have no doubt in my mind he will win the battle! He is pretty much awesome like that!
Nebulizer treatment TOBI too, cuz it is around $6,000 a month. They say there is no proof that alternating between TOBI and Cayston every other month helps. But Dr. B says it does. It helps our bodies not build up resistance the one anitbiotic or the other. Keeps those CF bugs on their toes!

That's all the newest with me! The play I'm in shows in about a week and a half! :-) I get to play a bossy very pregant wife, with a baby I scream at. Should be fun! haha..
Labels:

Comments

Post a Comment

Popular posts from this blog

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...
2 comments
Read more

Oh the Joys of a Colonoscopy!

Colonoscopy, Fun: As you may remember from reading my October Posts (  Oct Post #1   &  2nd Oct Post ) that I was admitted a second time that month for Gastrointestinal issues. I was having stomach cramps and what was believed to be Antibiotic Associated Diarrhea. However, CT scan revealed my colon and intestines were inflammed.  After having a rough 2 months of GI issues, and cuting out most food (diary, meat, grease, carbonated beverages, and sugar). I finally am getting a Colonoscopy to see what in the world is going on! I'm been taking Probiotics, was on meds for both C. diff and AAD. I even added driking Kefir to add to the probiotics and good bacteria.  Only now am I seeing any changes, less stomach aches, etc. I add a 1/2 cup pf the Kefir to my smoothie, its not bad -yum! I really reccommend it and Probiotics (so talk to your doctor about it), it could really help you out! Read about Colonoscopies here! So I'm glad to be g...
4 comments
Read more

What Else Should I Do?

Need Some Feedback.       May has almost come to an end. I love May, nice weather, summer starts, AND its Cystic Fibrosis Awareness Month! A lot of the CF walks are in may and its a great time to raise funds and awareness for CF! However, I'm also excited that it will be June soon! June 28th is the Princeton Cystic Fibrosis Walk. I've helped organize other events in the past. Whether for school or other non-profits I've volunteered at, but this CF Walk is a little different. It is the first time, I've put together a City event. Or put together an event that is so near and dear to my heart. I'm so thankful that I had so many people sign up so quickly. Pretty much everyone family member I have on my mom's side signed up the first day. And I've have had some family and friends help me (giving me ideas, helping me recruit, etc). But, Its the first time I didn't have a committee or team behind me to help execute the ideas and actually plan the event. I lo...
2 comments
Read more