Skip to main content

Happy 1 year Blog!

Happy 1 year Blog and Chicago!


Today is the mark of one full year of blogging! I started my blogging on Feb 12, 2012.  I was told I should share my experiences about living with CF with others, and there it started. To learn about me, read my summary on my life/ Cf/ Med problems Click HERE  and to read my first few blog entries Click HERE!

I hope everyone has loved reading and being a part of my blog. As of Today I have had over 7,765 visits on my site in the past year. My first few blogs averaged 15- 20 views per entry. Now I range between 60-80 views per blog. I'm pretty happy that it seems people have enjoyed reading. As long as people continue to follow my blog, I will continue writing!

Chicago
This past weekend my boyfriend and I went to Chicago. On Saturday we got up there in the early evening and hung out with a couple friends. Then we went to dinner at The Signature Room (95th Floor of the Hancock Building). It was amazing, the food, the company, and the veiw of course!

Here was our veiw:

 We walked around Chicago for a bit both days and sunday we went to Navy Pier to see Julius Caesar at the Shakespear Theatre! The play was amazing! And I had a lot of fun this weekend. It is weird to think how few times I have actually been in Chicago, while all my life living a few hours away. We got back late on Sunday, I did some homework and fell asleep, what an ending to an amazing weekend...lol


Even with the busy weekend I got my meds done and I didn't lose any weight. In fact I gained a pound. I weigh 94 ish now! I have to focus on health, work, school, the plays I'm in, and applying to grad schools. I have no time to worry about housework. So as I sit here, doing therapies and blogging, I can see things I need to put away or do. It is annoying, because honestly, I like to clean (if I can listen to and dance to music). Cleaning is instant gratification and it can be fun. But sadly, my house it going to get messy this week. Saturday I can clean it in the morning though! When does everyone else clean? At night before bed, throughout the day, I never have the time and lately nor the energy to get myself to do it, except on my days off. My days off turn into massive cleaning binges (my house is never that dirty, I'm just a lil obsessive about it).

Also, once my weight it 98 ish I'm going to start hard core jogging again. And next week I hope to start lifting weights with a friend of mine (he's a trainer/body builder), so he's going to help me out. Maybe, I can get some muscle on my scrawny arms. yay!



Labels:

Comments

Post a Comment

Popular posts from this blog

Close to a Cure?!?!?! and Thank You!!!!!!!!

Help Us Find A Cure & Thank you! Lots of new meds and treatments are being researched thanks to the CF Foundation and the people who support it! Thank you soooo much everyone for supporting me and the CF GreatStrides Walks! I hope you enjoy hearing about the cool new ways steps are being taken towards finding a cure for CF and how everyone has helped me and us (the cf community)! New Treatments And Break Throughs: As you may know, from reading my last couple blogs. Some exciting news was released!  VX-809 + Kayldeco Phase 3 (6 month clinical trials) has started! Which means if all goes well, this could be on the market in the next year or two. This drug helps target the actual faulty gene. It will help improve our lung function (hopefully gain some back, the part that isn't damaged) and will help us to slow the decline of our lungs health tremendously! This is the treatment for my mutations!To read more about this new treatment click Here! Also, there are other medic...
Post a Comment
Read more

First blog: Hello

My first Blog: A little About Me I'm not sure why I have decided to start a blog, however, here I am.  I have honestly thought about writing about my life for years, but have always chickened out. I have finally decided to share the experiences life has thrown at me. The biggest reason I have been asked to blog by people is because of everything I have dealt with medically. I have Cystic Fibrosis and a few other medical problems...This is probably the best reason why I should blog. I can relate to others who are dealing with medical problems, however,my CF is also why I did not want to write this blog. CF can be embarssing and annoying sometimes... but it  has helped define who I have become to be as a person. Therefore, (yes, even though I want it cured) I don't hate having CF. Let me start off with some basic info and statements. I'm 26 yrs old and have dealt with CF all my life. In this blog you will hear recent stories (good, bad, embarassing); a...
Read more

Craft Show and Work.

Craft Show This Saturday is the Craft Show! Mom and I will be selling our stuff there! It's at Liberty Village in Princeton from 11am-2pm! Please come and see all the booths! There will be 20 booths, kid's bouncy houses, games, prizes, raffles, etc. Proceeds from raffles, etc help give the residents of Liberty Village Christmas gifts and a Chirstmas Celebration! I'm excited to do this craft show, I remember going to them when I was younger! I loved it! Mom would take me along and I really enjoyed spending the day with her and looking at all the crafts! Mom is selling lots of hats, some purses, pouches, a couple blankets, teddy bears, etc. I will be doing my usual picture frames, notecards, etc. I will also be selling Michelle's My Bubble Products! To see some products: A Few of Mom's products -> Click Here!     Michelle's My Bubble products -> Click Here!      My mom said she is going to set aside a portion of her profits to ...
Post a Comment
Read more