Skip to main content

Upcoming Chicago Weekend

Chicago Weekend:

I requested off from both my jobs, I don't have any play practices, etc; And I'm going to Chicago this weekend! I've been looking forward to the trip ever since Christmas! It was part the of the Christmas present Andrew gave me!

I even got to sleep until 9:00am this morning! Now, I'm just doing my meds and packing my bag for Chicago. I've been doing as much as I can medically since my Clinic Thurs. I was so disappointed in myself. I can't afford to let my numbers drop like that. Not if I want them to increase more. Things I need to start doing EVERYDAY:

10 nebulizers
1 hour of my vest (once I get my new one)
eat at least 2,500 calories
sleep at least 6 hours
take all my pills
do my inhalers
exercise/lift/jog (at least one of them)
take at least 1,050 calories through my stomach feeding at night.

If I can fit this into my schedule everyday, then I will be doing awesome! If I stick to this, then I can have a rewarding clinic on May 11th!

A good start: I'm packing all my meds this weekend! The awesome part is I just had my last dose of Cayston, so I start Tobi now! Switching my nebulizer antibiotics kills my singing voice. It takes away my higher range. But, Tobi is only twice a day and doesn't require a 2nd machine!

Which makes packing easier! Yay! Plus, I won't be running around serving tables, dancing, etc this weekend, so I shouldn't lose as many calories. And I will probably eat more calories than normal too! So not only will this weekend be amazingly fun, but help me gain some weight back too!

Believe it or not, I haven't been to Chicago much. I've taken the train in a couple of times, gone to Navy Pier, some museumes, etc. But not much else. So I'm very much looking forward to this weekend!

I hope you all have a great weekend as well!

ps. I updated my clinic charts on my "Clinic and Health" page!


Labels:

Comments

  1. AnonymousFebruary 9, 2013 at 10:44 AM

    Cheriz you are such an amazing person. I think if there is someone to look up to it is you! you are so possitive and encouraging. What an honor to be apart of your journey. I know you will accomplish everything you set your mind to. I really get inspired by reading all of your blogs. whether good or bad they are uplifting, and possitive no matter what comes your way. Keep up all the impact you make on others live. !!!!!

    ReplyDelete
    Replies
    1. CherizFebruary 9, 2013 at 10:55 AM

      Aw, thanks! I'm glad you enjoy reading them! I enjoy sharing. The hardest part about CF, since all CFers have different mutations, no CFer are exactly alike. It helps to hear about others to be able to know we aren't alone. I hope I can do that for some of the CF Community! And my postive outlook comes from my parents! They are truely amazing! Thanks for following :-)

      Delete

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...
18 comments
Read more

Holding Down the Fort

My husband, Andrew, is currently at Wartburg Theological Seminary and is starting his first week of his second year there. Every year he lives on campus for one week. He enjoys starting each semester on campus where he can build friendships with other students and professors. It's the only time he is on campus. Usually he does long-distance learning, online, from home. It was the only way we could manage him doing a four year Master degree program while working. This week is the hardest for us. However, we have something on Thursday and Friday this week, so Andrew will only be gone 3 days instead of the typical full five. So that will make this week a bit easier than the other semesters. It's hard for Andrew to be away, although I know he is having a blast. We send random pictures back and forth like a book he may be reading or a game I may be playing with our kiddo. It is hard for the kid(s) to not see Andrew every day. We are foster parents and stability is a BIG issue for ...
2 comments
Read more

Beginning of the Year Troubles

Normal "beginning of the year" troubles for Andrew and I only really consist of one topic: Our Deductible [please no Obama, or government bashing] I've always had high deductibles ALL MY LIFE (no matter who was president). The problem is I hit my deductible within the first week of January. In the past I have always prepared for this and since I was still on my father's insurance (up until last year) he typically paid the bill (at least for medical stuff). And in the future Andrew & I won't have such an issue with this. We will be able to save and plan ahead for the $3,000 (for my deductible, his is another $3,000). However, this year was more difficult. We saved all 2013-2014 for our wedding & honeymoon, plus had our deductible saved too. But Real Estate was a pricey career to start, I've put almost $5,000 into it (classes, dues, licensing, exam, advertising, etc). So needless to say our deductible disappeared, thanks to my new career. Wh...
10 comments
Read more