Skip to main content

My CF CHALLENGE

CF CHALLENGE!

I have signed up for 3 Greatstrides Walks this year!! I usually bring a couple friends to two of the walks. But, one is very local this year!

There is a walk only 15 mins away (next closest is an hour), so this is very exciting!

I'm really trying to keep on top of doing all my meds. These past few days I have missed some, but overall still doing well.

HOWEVER, I wanted to add some motivation I couldn't resist! Fundraising for the CF Foundation, for researching for a cure, etc.

SO, I proposed this challenge:

For every $100 my team or I raise for my walks (any of them) I will do a full weeks worth of meds! (this includes at least 2 cans of feeding a night and all 10 nebulizers everyday!)

(and if we had coporate or large sponsors/donations those count too)

Last year my team raised $1,200 at one walk and $75 at my smaller one. If we only raised that much this year I would have to do all my meds for roughly 3 months!

We started fundraising and registering for the Walk (June 1, 2013) last week! We have raised $300 so far! :-) I hope that my health will motivate my team to fundraise as much as their contributions will motivate me to be healthy!

PLUS at the end of the year maybe we can see a difference in my Clinic/ Tests Results!!!!!!

To donate or register with my team for our Hollowayville Walk (our main one this year) click HERE!

I also started a Facebook Event: click HERE to read the info!

And of course, a pciture of my team from last year's Peoria Walk! Thanks everyone for donating, helping, and walking- It really means a lot! :-)

Labels:

Comments

Post a Comment

Popular posts from this blog

Craft Show and Work.

Craft Show This Saturday is the Craft Show! Mom and I will be selling our stuff there! It's at Liberty Village in Princeton from 11am-2pm! Please come and see all the booths! There will be 20 booths, kid's bouncy houses, games, prizes, raffles, etc. Proceeds from raffles, etc help give the residents of Liberty Village Christmas gifts and a Chirstmas Celebration! I'm excited to do this craft show, I remember going to them when I was younger! I loved it! Mom would take me along and I really enjoyed spending the day with her and looking at all the crafts! Mom is selling lots of hats, some purses, pouches, a couple blankets, teddy bears, etc. I will be doing my usual picture frames, notecards, etc. I will also be selling Michelle's My Bubble Products! To see some products: A Few of Mom's products -> Click Here!     Michelle's My Bubble products -> Click Here!      My mom said she is going to set aside a portion of her profits to ...
Post a Comment
Read more

Updates Galore!

Big News, Big Times, Big Change: I had my post hospital Doctor's appointment on April 21st and it went well. I posted a video on my CF facebook page. My weight is back on track, heading up. Also, my lung function was around 55%, so that's almost my baseline. I got to take my needle out that night. OH BOY!! I loved being needle free! Whoohoo no more IVs!!!!! In the last week I have been super busy with a few different things. 1. Work. I have a new client AND I had all my post licensing webinars & exams this last week! 2. More CF Foundation Volunteer work. I held a presentation in my home town, where I discussed CF, the different mutations & severity of classes, as well as fundraising for great strides. I talked about the history of the CF foundation, care centers, and more about our local IL CF fundraisers. Overall, it wasn't a big turn out, so I was a little bummed. My hometown has always supported my CF cause, so it was disappointing not to have a good numb...
Post a Comment
Read more

LOTS, LOTS, LOTS to Tell!

Doing What I Can: People can tell me " Wow, how do you keep up with all that" (referring to all my meds). Sometimes people tell me "That's so awesome that you are doing all that".... Well, I guess, but not really. I just do what the doctors tell me, I know its the best chance I have to living a longer fuller and better quality of life. Plus I have lot of help from Andrew, family, and friends! Right now the main thing I'm working on is: 1. Keeping my lungs at 56% (since my last appointment ) AND 2. following the dietary restrictions the GI specialist gave me (read about that appt here ) & I'm keeping my Food Journal for him to look at. Here's how that is going: Okay...  For the last 7 days I've had no meat in my diet. I really miss my meat and to be honest it didn't help a lot. This week starting today I'm no dairy for 7 days. Then I'm no meat and dairy... Then no gluten for a week. I go back to the specialist in 5 weeks. I...
Post a Comment
Read more