Skip to main content

My CF CHALLENGE

CF CHALLENGE!

I have signed up for 3 Greatstrides Walks this year!! I usually bring a couple friends to two of the walks. But, one is very local this year!

There is a walk only 15 mins away (next closest is an hour), so this is very exciting!

I'm really trying to keep on top of doing all my meds. These past few days I have missed some, but overall still doing well.

HOWEVER, I wanted to add some motivation I couldn't resist! Fundraising for the CF Foundation, for researching for a cure, etc.

SO, I proposed this challenge:

For every $100 my team or I raise for my walks (any of them) I will do a full weeks worth of meds! (this includes at least 2 cans of feeding a night and all 10 nebulizers everyday!)

(and if we had coporate or large sponsors/donations those count too)

Last year my team raised $1,200 at one walk and $75 at my smaller one. If we only raised that much this year I would have to do all my meds for roughly 3 months!

We started fundraising and registering for the Walk (June 1, 2013) last week! We have raised $300 so far! :-) I hope that my health will motivate my team to fundraise as much as their contributions will motivate me to be healthy!

PLUS at the end of the year maybe we can see a difference in my Clinic/ Tests Results!!!!!!

To donate or register with my team for our Hollowayville Walk (our main one this year) click HERE!

I also started a Facebook Event: click HERE to read the info!

And of course, a pciture of my team from last year's Peoria Walk! Thanks everyone for donating, helping, and walking- It really means a lot! :-)

Labels:

Comments

Post a Comment

Popular posts from this blog

Close to a Cure?!?!?! and Thank You!!!!!!!!

Help Us Find A Cure & Thank you! Lots of new meds and treatments are being researched thanks to the CF Foundation and the people who support it! Thank you soooo much everyone for supporting me and the CF GreatStrides Walks! I hope you enjoy hearing about the cool new ways steps are being taken towards finding a cure for CF and how everyone has helped me and us (the cf community)! New Treatments And Break Throughs: As you may know, from reading my last couple blogs. Some exciting news was released!  VX-809 + Kayldeco Phase 3 (6 month clinical trials) has started! Which means if all goes well, this could be on the market in the next year or two. This drug helps target the actual faulty gene. It will help improve our lung function (hopefully gain some back, the part that isn't damaged) and will help us to slow the decline of our lungs health tremendously! This is the treatment for my mutations!To read more about this new treatment click Here! Also, there are other medic...
Post a Comment
Read more

Holding Down the Fort

My husband, Andrew, is currently at Wartburg Theological Seminary and is starting his first week of his second year there. Every year he lives on campus for one week. He enjoys starting each semester on campus where he can build friendships with other students and professors. It's the only time he is on campus. Usually he does long-distance learning, online, from home. It was the only way we could manage him doing a four year Master degree program while working. This week is the hardest for us. However, we have something on Thursday and Friday this week, so Andrew will only be gone 3 days instead of the typical full five. So that will make this week a bit easier than the other semesters. It's hard for Andrew to be away, although I know he is having a blast. We send random pictures back and forth like a book he may be reading or a game I may be playing with our kiddo. It is hard for the kid(s) to not see Andrew every day. We are foster parents and stability is a BIG issue for ...
2 comments
Read more

Sunny Days!

Since my last Cystic Fibrosis clinic, which you may have read about on my Facebook page , I have been working on a couple goals... both medical and personal. And boy do I love this summer weather! Summer weather combines one medical and one personal goal!! EXERCISE + MORE FAMILY TIME! I'm not one to enjoy extreme heat (90+), but have really LOVED the nice days outside with the family this summer! Sun (+sunblock LOL), freezie pops, flip flops, YES PLEASE! We have even spent some time at the lake this summer! Our kiddo(s) LOVE(S) the water and so does Andrew! I don't enjoy being IN the water as much as I like being ON the water. We have spent a dozen days this summer at our two favorite park/splashpads as well! Even days spent at home are usually in the kiddie pool. We are enjoying this weather and getting some exercise too! WALK! I try to talk advantage and do some walking when its nice out and I feel good. My Physical Therapist at clinic said it needs to be 15 mins of full acti...
2 comments
Read more