Skip to main content

10 therapies = 1 good day!

New Years:

I have never taken New Year's Resolutions seriously, I actually never even make them. This year I decided to see if I could keep up with one.

I decided a few days before New Years that my goal would be to do 5 nebulizers (out of 9 a day) and jog. However, the first two days of the year I had enough time (or made enough time in my schedule) to be able to do all 10 nebulizer treatments!

So I'm going to keep doing all of them and see how long I can go. My Vest Machine is broken, so I can't do my vest. But I'm pretty active, I do theatre, dance, and even my waitressing can give my lungs a work out. So until I get the insurance to okay the new machine It should be fine.

I'm not sure how often I will jog, since it is still freezing out, but I enjoy jogging, so once I can I will be out jogging.

Doing all my meds takes quite a bit of time, I do 4 in the morning, 3 in the afternoon and 3 at night. (I'm doing ten right now, since I'm on Cayston this month). Cayston months I do 10, Tobi months I do 9, since Tobi only has to be done 2x a day. I'm not sure how they will all fit, once I'm in classes, waitressing, and with play rehearsals. But I will cross that bridge when I get there.

For now, I'm just extremely happy I got up 2 hours before work and had enough time to do them! I've also done the equivalent of 3 cans of stomach feeding each night. Clinic is in 2 months I have to get my numbers back up! In July of 2012 I was at 107 lbs and 61% lung function. Considering in 2010 I was in the 30s for lung function and dropped really low in weight for two months (below 90 lbs)... I KNOW I do not want to go back to there.

 (ps. In November I was 102 lbs, and 59 % lung function. Right now I'm 96 lbs and prolly 57% ish.) So let's see what I can do in the next two months!!! Gotta get those numbers up!!!

Comments

  1. Awesome job with the treatments, but sorry to hear about the Vest. I have been in the 30's before and I agree that I never want to go back there! It is a scary place to be.

    ReplyDelete

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...

Calling All Who Care!

     Please Read : Okay, so first off I want to say that this post is tough. It's tough to think about and write. However, it is extremely important and a huge topic in the CF Community, and is VERY NEAR AND DEAR to MY HEART!  First I want to ask you... What if I told you I needed a Transplant. That I needed to reach a certain weight, get my kindeys functioning better, get a higher pain tolerance, and get off a couple medications I take right now. What if I said I couldn't receive a 2nd chance at life unless I reached these goals and I raised a certain amount of money that seems impossible to raise. What if I had been in and out of the hospital off and on for the last year, with many surgeries, had multiple infections and my lung function dropped from 40s to the teens and now is slowly dropping still. What if I was starting to wonder if my decision to go through the grueling Transplant tests was worth it. What if I start to get down about my cf and wondering why ev...

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...