Skip to main content

Roller Coaster Effect.

Roller Coaster Effect:

Yay, I'm better and I've been eating more. That is a big key to my knowing I'm doing better. A couple nights ago, while I was at school, I had one of those "seizure type" episodes.  I don't call them seizures, because people automatically freak out and ask me if I start shaking on the floor. 

No, I haven't had any grand mal seizures since I was very little. The seizures I have now are related to my brain freaking out because it isn't receiving enough oxygen. I'm just told to breathe deep and focus on breathing to make them go away. Monday's wasn't that bad. I could stand, walk, and still respond to people. I was just on a very slow speed. It would take a while for things to process, my vision got blurry, and I was dizzy and a little numb.

 Usually, I end up on the floor since my body goes completely numb, I can barely see, and I'm so dizzy I just cling to the floor ( It reassures me I'm on the ground and not moving). Communicating during them takes me a bit of effort.

However, before class was starting I could tell I was getting a little better, so I was pretty sure I would be okay. However, seizures completely drain me. Like I wanna pass out for the next two days drain me. Luckily, it wasn't a full blown seizure, so i didn't sleep away two days and I was able to go to work, etc the next day!

I'm not sure how many other CFers have seizure disorders or if they have similar experiences, but I wish the doctors knew exactly what causes them, so I can avoid whatever it is! Anyone (CFers) ideas?

Having medical problems/episodes always remind me how lucky I am to be so loved.  For example, I don't remember the medical crisis, or the pain, I remember the love. my 2003 hospital scare, I don't rmember how much it hurt, I remember waking up to my friend Michelle sleeping on the concrete floor, cuz she wouldn't let go of my hand. That may be the worse night I have ever had medically, but because she came with my mom at midnight, drove 3 hours to see me and was there when I woke up, it became a memory I love and cherish. My medical problems constantly remind me how lucky I am, I have so many amazing family members and friends! Love them all!

Comments

Popular posts from this blog

Updates!

 Hey everyone! Sorry it’s been a while. Covid struggles have been all around and we have been focusing our on our kiddo and current life situations (jobs, home, everything really). We have been posting regularly on the Facebook page (www.facebook.com/CherizCFPage). We will keep you updated on there for now,  because we are doing some big changes to our current blog! Stay tuned!  In meantime, message our FB page if you need anything. Keep safe and stay happy.  We will be back. Promise! 

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...

My Body Can't Keep Up

I turned 34 in April this year! I love celebrating my birthday each year and seeing more wrinkles and gray hair appear. I LOVE that I am building this beautiful life with my family. I just wish my body could keep up... Being born with cystic fibrosis meant some challenges throughout my life. I never knew when CF would throw me a curve ball. I missed a lot of holidays in the hospital growing up and sometimes my body tells me to stop. The last few months have been more rough for my CF-related Arthritis. And today isn't any different, despite it being Father's Day! Dad & Andrew I had wonderful plans to go home to see my Dad today, then come back home in time to make some dinner for my family when Andrew gets off work around 5 or 6pm tonight. I had a lot of great plans to celebrate my husband and Dad for Father's Day- They deserve it. But, I woke up with frozen/stiff joints and spots all over. I can barely move, let alone walk or drive today. So all those plans went out the...