Skip to main content

Roller Coaster Effect.

Roller Coaster Effect:

Yay, I'm better and I've been eating more. That is a big key to my knowing I'm doing better. A couple nights ago, while I was at school, I had one of those "seizure type" episodes.  I don't call them seizures, because people automatically freak out and ask me if I start shaking on the floor. 

No, I haven't had any grand mal seizures since I was very little. The seizures I have now are related to my brain freaking out because it isn't receiving enough oxygen. I'm just told to breathe deep and focus on breathing to make them go away. Monday's wasn't that bad. I could stand, walk, and still respond to people. I was just on a very slow speed. It would take a while for things to process, my vision got blurry, and I was dizzy and a little numb.

 Usually, I end up on the floor since my body goes completely numb, I can barely see, and I'm so dizzy I just cling to the floor ( It reassures me I'm on the ground and not moving). Communicating during them takes me a bit of effort.

However, before class was starting I could tell I was getting a little better, so I was pretty sure I would be okay. However, seizures completely drain me. Like I wanna pass out for the next two days drain me. Luckily, it wasn't a full blown seizure, so i didn't sleep away two days and I was able to go to work, etc the next day!

I'm not sure how many other CFers have seizure disorders or if they have similar experiences, but I wish the doctors knew exactly what causes them, so I can avoid whatever it is! Anyone (CFers) ideas?

Having medical problems/episodes always remind me how lucky I am to be so loved.  For example, I don't remember the medical crisis, or the pain, I remember the love. my 2003 hospital scare, I don't rmember how much it hurt, I remember waking up to my friend Michelle sleeping on the concrete floor, cuz she wouldn't let go of my hand. That may be the worse night I have ever had medically, but because she came with my mom at midnight, drove 3 hours to see me and was there when I woke up, it became a memory I love and cherish. My medical problems constantly remind me how lucky I am, I have so many amazing family members and friends! Love them all!

Comments

Popular posts from this blog

Updates Galore!

Big News, Big Times, Big Change: I had my post hospital Doctor's appointment on April 21st and it went well. I posted a video on my CF facebook page. My weight is back on track, heading up. Also, my lung function was around 55%, so that's almost my baseline. I got to take my needle out that night. OH BOY!! I loved being needle free! Whoohoo no more IVs!!!!! In the last week I have been super busy with a few different things. 1. Work. I have a new client AND I had all my post licensing webinars & exams this last week! 2. More CF Foundation Volunteer work. I held a presentation in my home town, where I discussed CF, the different mutations & severity of classes, as well as fundraising for great strides. I talked about the history of the CF foundation, care centers, and more about our local IL CF fundraisers. Overall, it wasn't a big turn out, so I was a little bummed. My hometown has always supported my CF cause, so it was disappointing not to have a good numb...

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...

LOTS, LOTS, LOTS to Tell!

Doing What I Can: People can tell me " Wow, how do you keep up with all that" (referring to all my meds). Sometimes people tell me "That's so awesome that you are doing all that".... Well, I guess, but not really. I just do what the doctors tell me, I know its the best chance I have to living a longer fuller and better quality of life. Plus I have lot of help from Andrew, family, and friends! Right now the main thing I'm working on is: 1. Keeping my lungs at 56% (since my last appointment ) AND 2. following the dietary restrictions the GI specialist gave me (read about that appt here ) & I'm keeping my Food Journal for him to look at. Here's how that is going: Okay...  For the last 7 days I've had no meat in my diet. I really miss my meat and to be honest it didn't help a lot. This week starting today I'm no dairy for 7 days. Then I'm no meat and dairy... Then no gluten for a week. I go back to the specialist in 5 weeks. I...