Skip to main content

Focus and Become the Zombie.

So much to do!

I have been eating a lot more and I hope my weight is still climbing, but my usual 5 therapies a day (supposed to be 9) didn't happen in the last 48 hours. To be honest, I haven't done a single med since yesterday. Ugh and I can tell.  I could list a million reasons why, but bottom line I always find something else to do. Something that I can convince myself is more important, which is followed by my brain saying "its okay, I will get back on track tomorrow." I know it is normal to struggle some days (or for a few days in this case) to do them all. But it doesn't make it any better and it shouldn't become my excuse.

Tomorrow I work 10:30am-2pm, I AM going to get up at 7:30 do all 4 nebulizers before work and I will do my 2 afternoon nebs between 2-3pm. I will be out of town from 3-11pm. Honestly, I probably won't don't my night meds, since I will be tired and have to work morning and evening shift friday. However, friday night I'm going for dinner after work with a friend and Saturday after my lunch shift I'm going to my old college town for a Christmas Party. I'll get to see some friends then too! I will be packing my meds for that trip though!

I found myself thinking today  "It's okay, once Christmas is over I can get back on track". Wow, Christmas isn't until tues... I was giving myself an okay to no do them for 5 days. That's not acceptable.  I once had a conversation with a friend about how sometimes its almost like zombie like... wake up ,meds, eat, work ,meds, class, meds, hang out with friends, hmwk, meds, night feeding, sleep, repeat. repeat. I do meds as often as some addicted to facebook may spend on facebook. But I if I become a zombie focused on meds, then my health will go up. So as she says "Be the Zombie, Get the Dream!" I can do it, I can get back on track. Oh and my dream is 75% lung function ( I will shoot for higher when I obtain my 75%, not IF but WHEN)

Maybe tomorrow I should become a zombie? I think I pull it off, right?

Comments

Popular posts from this blog

Close to a Cure?!?!?! and Thank You!!!!!!!!

Help Us Find A Cure & Thank you! Lots of new meds and treatments are being researched thanks to the CF Foundation and the people who support it! Thank you soooo much everyone for supporting me and the CF GreatStrides Walks! I hope you enjoy hearing about the cool new ways steps are being taken towards finding a cure for CF and how everyone has helped me and us (the cf community)! New Treatments And Break Throughs: As you may know, from reading my last couple blogs. Some exciting news was released!  VX-809 + Kayldeco Phase 3 (6 month clinical trials) has started! Which means if all goes well, this could be on the market in the next year or two. This drug helps target the actual faulty gene. It will help improve our lung function (hopefully gain some back, the part that isn't damaged) and will help us to slow the decline of our lungs health tremendously! This is the treatment for my mutations!To read more about this new treatment click Here! Also, there are other medic...

Blog Around the World

Linking Blogs Around the World: Last week I was contacted by my friend Kymberly at  Peas in a Pod Creations  to participate in the Blog Around the World Posts.   Pic: Me, Kym (the Bride), and here sister, Stephanie!   While Kymberly doesn't have Cystic Fibosis, her blog is an outlet for her beautiful quilts and other sewn, knitted, or quilted projects. Kym and I not only were best friends in high school, but we were next door neighbors. (like she said in her blog post) We lived exactly 18.7 feet from each other and some summers we spent literally the whole day 9am-9pm together hanging out! So of course I was thrilled for her to invite me to do this posting challenge.This is a great way for bloggers, like myself, to share our favorite blogger pages that we visit. Here are the ?s that came along with the post. What am I working on? How does my work differ from others in the same genre? Why do I create/Write? How does my writting process work? Hopefully, if you a...

First blog: Hello

My first Blog: A little About Me I'm not sure why I have decided to start a blog, however, here I am.  I have honestly thought about writing about my life for years, but have always chickened out. I have finally decided to share the experiences life has thrown at me. The biggest reason I have been asked to blog by people is because of everything I have dealt with medically. I have Cystic Fibrosis and a few other medical problems...This is probably the best reason why I should blog. I can relate to others who are dealing with medical problems, however,my CF is also why I did not want to write this blog. CF can be embarssing and annoying sometimes... but it  has helped define who I have become to be as a person. Therefore, (yes, even though I want it cured) I don't hate having CF. Let me start off with some basic info and statements. I'm 26 yrs old and have dealt with CF all my life. In this blog you will hear recent stories (good, bad, embarassing); a...