Skip to main content

My passport came! How to travel:

I got my passport today!

I get to travel with my two uncles to New York, to Niagara Falls, and into Canada in August! I'm so excited! I can't wait! I had the opportunity to go to Las Vegas last fall and up to Minnesota (Mall of America) in December! It had been years since I had traveled. I use to thinking traveling would be really tough.

Its not as tough as I thought. I carry my machines in a carry-on case (so I don't lose them and they do not get broken). Pills, feeding bags, needless syringes, medical tape, and all other non liquid medical stuff goes in the carry on. Oh, and snacks of course! (YUM)

All liquid medication (breathing treatment meds, and feeding cans)all go in the big suitcase. I pack 4 cans of feeding per night (they add up quickly). 

Tip:  I pack ensure or high calories snacks for during the day (I tend to burn more calories on vaction than at home) And as I use my feeding and medication up I have more room in suitcsae for souvenirs! Drink a lot and wear light colored clothing (if going somewhere warm). (CFers tend to dehydrate fast) I know I always dehydrate pretty fast when in the sun.

I'm always nervous that security at the airport is going to think all my meds, equipment, wires, cords, etc are "fishy" looking. So I take proof of medications and other documents needed to explain my medical condition when going through security, which I usually have to do. (The poor kid working the security at the airport last time, looked soo confused, he had no idea how to pack it back up after they took stuff out, so he asked me to do it...lol)

I think the reasons why I have loved going on vacation in the last year was I learned a lot of the enjoyment comes from WHO you go with! I prefer going with family or close friends. I'm not a fan of big group vacations, or even camps with lots of people that I don't know well. Its harder to feel comfotable for me.

(side story: a few years ago I went to a weekend retreat with an organization I was active in during college and the first night It was really awkward for me. A girl in the room (a room with 15 girls sleeping in bunk beds) starting loudily complaining about a noise she heard. She kept saying comments like "Oh my gosh that is sooo annoying who phone is going off, seriously they have it on vibrate still, they need to turn it to silent if people are going to text." She went on further to say it was going to keep her up all night and a few others agreed even... When the other girls agreed..I felt really bad. They meant my feeding pump. It makes a whoosing sort of sound. I've gotten used to it, but it was driving them bonkers. I quickly turned it off and waited a little bit.  Then (in the dark, when nobody could see me) I got my machine and my cell phone and went into the other room. So I slept on the floor in the great room, on top of my blanket and woke up two hours earlier to make sure nobody would see me. Very awkward weekend. lol)

Make sure you are COMFORTABLE with whoever you are going with and plan ahead! Make sure whoever you are traveling with knows what to expect. Ending up in an awkward situation like mine is not fun. I didn't want to tell the girls and make them feel bad. And I didn't want to keep anyone up.

Prepare for you treatments. I don't plan my days out on vacation, but I know when I need to do meds and a couple hours beforehand I figure out how to fit them in!

Traveling can be lots of fun! Keep your meds organized and keep on top of doing everything that will keep you healthy. I had tons of fun last year on vacation (with some friends) and I'm really excited to go with my Uncles too, they obviously know all about my CF and I always have an exciting time when I am with them! Plus, I have never been that far east or up to Canada! Well my meds are done, headed to bed for the night! G'night!
 



Comments

Popular posts from this blog

Updates Galore!

Big News, Big Times, Big Change: I had my post hospital Doctor's appointment on April 21st and it went well. I posted a video on my CF facebook page. My weight is back on track, heading up. Also, my lung function was around 55%, so that's almost my baseline. I got to take my needle out that night. OH BOY!! I loved being needle free! Whoohoo no more IVs!!!!! In the last week I have been super busy with a few different things. 1. Work. I have a new client AND I had all my post licensing webinars & exams this last week! 2. More CF Foundation Volunteer work. I held a presentation in my home town, where I discussed CF, the different mutations & severity of classes, as well as fundraising for great strides. I talked about the history of the CF foundation, care centers, and more about our local IL CF fundraisers. Overall, it wasn't a big turn out, so I was a little bummed. My hometown has always supported my CF cause, so it was disappointing not to have a good numb...

LOTS, LOTS, LOTS to Tell!

Doing What I Can: People can tell me " Wow, how do you keep up with all that" (referring to all my meds). Sometimes people tell me "That's so awesome that you are doing all that".... Well, I guess, but not really. I just do what the doctors tell me, I know its the best chance I have to living a longer fuller and better quality of life. Plus I have lot of help from Andrew, family, and friends! Right now the main thing I'm working on is: 1. Keeping my lungs at 56% (since my last appointment ) AND 2. following the dietary restrictions the GI specialist gave me (read about that appt here ) & I'm keeping my Food Journal for him to look at. Here's how that is going: Okay...  For the last 7 days I've had no meat in my diet. I really miss my meat and to be honest it didn't help a lot. This week starting today I'm no dairy for 7 days. Then I'm no meat and dairy... Then no gluten for a week. I go back to the specialist in 5 weeks. I...

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...