Skip to main content

Vicious Cycles...

A couple awesome and beautiful cylces:

Who doesn't love the four seasons. The Cycle of Life, its a beautiful thing. And of course my favorite the Rock Cycle. Of course since I took 2 years worth of college geology classes I'm always in awe of the rock cycle. Both of these cycle are simply amazing and continue life.


And now some nasty ones:



Cycle #1:
Everyone loves weekends and in some ways I agree... I don't work on weekends and I usually have something planned that’s fun. I deliver mobile meals to the ederly (who are ADORABLE) & teach sunday school to Pre-K kids (who are ADORBLE). With lots of adobrable things on the weekends, what's not to love. Plus I'll take a quick road trip to visit someone, hang out with friends, and have people come visit me. But with weekends comes a huge dose of laziness for me. I tend to skip more meds, get hooked up to my night feeding later, resulting in less calories and less energy the next day, resulting in more laziness… oh the vicious cycle.


 Cycle # 2:
As you may know I have been having trouble getting my Vitamin D levels up. After 2 rounds of 2 weeks each of 50,000 units (1.25 Mg)of Vit. D daily. [Note: Average recommended dose for a person is 600-1,000 Units daily]. I’m taking 50,000 daily (that’s not a typo) for four weeks and it actually went down. However, I’m not too concerned other CFers have this problem and their doctors have found a way to correct it. And Dr. B has a plan. Plan B goes into action if my levels are not up next week. But "Hakuna Matata" - we'll figure out eventually!

 But thought I would share this: I was frustrated at my Vitamin D, so I did what anyone would do and googled it. I went onto every CF site, read a ton of articles, and I came to this conclusion: My Poster of an annoying CF cycle (especially my bone density is decreasing)!






ps. Getting blood tested again Saturday! Now to go jog! :-)


Labels:

Comments

Post a Comment

Popular posts from this blog

First blog: Hello

My first Blog: A little About Me I'm not sure why I have decided to start a blog, however, here I am.  I have honestly thought about writing about my life for years, but have always chickened out. I have finally decided to share the experiences life has thrown at me. The biggest reason I have been asked to blog by people is because of everything I have dealt with medically. I have Cystic Fibrosis and a few other medical problems...This is probably the best reason why I should blog. I can relate to others who are dealing with medical problems, however,my CF is also why I did not want to write this blog. CF can be embarssing and annoying sometimes... but it  has helped define who I have become to be as a person. Therefore, (yes, even though I want it cured) I don't hate having CF. Let me start off with some basic info and statements. I'm 26 yrs old and have dealt with CF all my life. In this blog you will hear recent stories (good, bad, embarassing); a...
Read more

Cystic Fibrosis Clinic Results. Not what I wanted, but...

My Results: I went down in lung function 2% points and lost  a couple more lbs. So I'm at 102. I was really disappointed with myself. I know that I have been doing  my meds and I have been doing my stomach feeding most nights too.  I have been making the right decisions and all my friends have been very supportive. I bring my nebulizers over to their houses to do them if we are hanging out, etc. It just wasn't enough this clinic. I really thought there would be a slight increase. However, I haven't been jogging since it is cold outside. And I know waitressing has been making it hard to gain weight. Plus, its winter. It is always harder for me to stay healthy in the winter. Dr. B was still pleased. He said "I should give myself a break, I have been doing everything he asked, I ran a 5K, and I'm still doing well." And that is true 2% increase isn't a huge decrease, only if I continue to decrease then there is a problem. Dr. B told me that I need to focus...
2 comments
Read more

Black Plague ( known as Cepacia B)

Black Plague I had a long car drive home to think, so this is long, but heartfelt. Tonight I went to a meeting for a non-profit I help with and while discussing somebody's anger issues. I decided to share a part of my past with the board that was there. I still am in shock I did so, considering very, VERY, few people know this. But I'm not ashamed and feel like others have been in my place. Naturally, the next step, is to share it on a blog, where everyone has access to it. (heh.) When I was little around middle school age I had some anger issues. I used to get angry over nothing and scream and once in a while even push my mom ( luckily I was tiny and not very strong). She would just hug me and tell me she loved me, she never got angry back.  She knew I was angry because quite a few of my friends with Cystic Fibrosis were passing away, from Cepacia B and other infections that were spreading ( apparently at the parties, camps, and apts) around. About a yea...
Post a Comment
Read more