Skip to main content

Vicious Cycles...

A couple awesome and beautiful cylces:

Who doesn't love the four seasons. The Cycle of Life, its a beautiful thing. And of course my favorite the Rock Cycle. Of course since I took 2 years worth of college geology classes I'm always in awe of the rock cycle. Both of these cycle are simply amazing and continue life.


And now some nasty ones:



Cycle #1:
Everyone loves weekends and in some ways I agree... I don't work on weekends and I usually have something planned that’s fun. I deliver mobile meals to the ederly (who are ADORABLE) & teach sunday school to Pre-K kids (who are ADORBLE). With lots of adobrable things on the weekends, what's not to love. Plus I'll take a quick road trip to visit someone, hang out with friends, and have people come visit me. But with weekends comes a huge dose of laziness for me. I tend to skip more meds, get hooked up to my night feeding later, resulting in less calories and less energy the next day, resulting in more laziness… oh the vicious cycle.


 Cycle # 2:
As you may know I have been having trouble getting my Vitamin D levels up. After 2 rounds of 2 weeks each of 50,000 units (1.25 Mg)of Vit. D daily. [Note: Average recommended dose for a person is 600-1,000 Units daily]. I’m taking 50,000 daily (that’s not a typo) for four weeks and it actually went down. However, I’m not too concerned other CFers have this problem and their doctors have found a way to correct it. And Dr. B has a plan. Plan B goes into action if my levels are not up next week. But "Hakuna Matata" - we'll figure out eventually!

 But thought I would share this: I was frustrated at my Vitamin D, so I did what anyone would do and googled it. I went onto every CF site, read a ton of articles, and I came to this conclusion: My Poster of an annoying CF cycle (especially my bone density is decreasing)!






ps. Getting blood tested again Saturday! Now to go jog! :-)


Labels:

Comments

Post a Comment

Popular posts from this blog

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...
2 comments
Read more

Video Blog: Life in the hospital (as a child)

The daily life in the hospital! Most people cringe at the idea of a hospital. However, when I was little I never minded going into the hospital. I usually would have at least one other friend with Cystic Fibrosis to hang out with there (before we knew about the "CF Bugs"). I didn't love being sick, but I loved my CF friends that I would hang out with. Also the hospital, nurses, and my parent's tried to make it a "normal" environment. I got up and put on cute clothes, "walked to school", flirted with a couple CF boys, did homework, came "home" (back to my room), my friends would ask my parent if I could go play with them. We'd hang out in the play room or go on a walk with one of my parents! My dad loved taking me on walks and I LOVED going on our walks! Here is a video blog of the route we took and bit of information on what is was like growing up (for a chunks at a time) in the hospital! (it is posted via youtube, let is dow...
3 comments
Read more

CF isn't all tears and saddness. Get a Full Picture.

  CF and Laughing Cystic Fibrosis can bring sad times and times of tears (like losing a close friend with CF, etc) BUT, it can bring so much joy and love. I've noticed most people love to talk about the people they meet while traveling. This is usually, because they have learned something from the person. Or the person is considered unique to them. I can do the same thanks to my Cystic Fibrosis. I may not have traveled much in my life thus far, but I have learned mountains of lessons from my CF. [Picture right:  Me ready for surgery in 2nd grade!] Forgive my shoutouts (but I must recognize a few amazing people) I have met some of the most amazing doctors: Chatrath, Dr. B Nurses: Sara & Marie (from Clinic), Lizzard, Melody (best IV stick ever), Deb, and Kris (you know a nurse is amazing if you love her after putting tubes down your nose!) Respitory Therapists: Jeannette, Lanell, and Don (you da Man) And Cookie Marrow (Musical Therapist- She would sing to me a...
2 comments
Read more