Skip to main content

Vicious Cycles...

A couple awesome and beautiful cylces:

Who doesn't love the four seasons. The Cycle of Life, its a beautiful thing. And of course my favorite the Rock Cycle. Of course since I took 2 years worth of college geology classes I'm always in awe of the rock cycle. Both of these cycle are simply amazing and continue life.


And now some nasty ones:



Cycle #1:
Everyone loves weekends and in some ways I agree... I don't work on weekends and I usually have something planned that’s fun. I deliver mobile meals to the ederly (who are ADORABLE) & teach sunday school to Pre-K kids (who are ADORBLE). With lots of adobrable things on the weekends, what's not to love. Plus I'll take a quick road trip to visit someone, hang out with friends, and have people come visit me. But with weekends comes a huge dose of laziness for me. I tend to skip more meds, get hooked up to my night feeding later, resulting in less calories and less energy the next day, resulting in more laziness… oh the vicious cycle.


 Cycle # 2:
As you may know I have been having trouble getting my Vitamin D levels up. After 2 rounds of 2 weeks each of 50,000 units (1.25 Mg)of Vit. D daily. [Note: Average recommended dose for a person is 600-1,000 Units daily]. I’m taking 50,000 daily (that’s not a typo) for four weeks and it actually went down. However, I’m not too concerned other CFers have this problem and their doctors have found a way to correct it. And Dr. B has a plan. Plan B goes into action if my levels are not up next week. But "Hakuna Matata" - we'll figure out eventually!

 But thought I would share this: I was frustrated at my Vitamin D, so I did what anyone would do and googled it. I went onto every CF site, read a ton of articles, and I came to this conclusion: My Poster of an annoying CF cycle (especially my bone density is decreasing)!






ps. Getting blood tested again Saturday! Now to go jog! :-)


Comments

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...

Video Blog: Life in the hospital (as a child)

The daily life in the hospital! Most people cringe at the idea of a hospital. However, when I was little I never minded going into the hospital. I usually would have at least one other friend with Cystic Fibrosis to hang out with there (before we knew about the "CF Bugs"). I didn't love being sick, but I loved my CF friends that I would hang out with. Also the hospital, nurses, and my parent's tried to make it a "normal" environment. I got up and put on cute clothes, "walked to school", flirted with a couple CF boys, did homework, came "home" (back to my room), my friends would ask my parent if I could go play with them. We'd hang out in the play room or go on a walk with one of my parents! My dad loved taking me on walks and I LOVED going on our walks! Here is a video blog of the route we took and bit of information on what is was like growing up (for a chunks at a time) in the hospital! (it is posted via youtube, let is dow...

Beginning of the Year Troubles

Normal "beginning of the year" troubles for Andrew and I only really consist of one topic: Our Deductible [please no Obama, or government bashing] I've always had high deductibles ALL MY LIFE (no matter who was president). The problem is I hit my deductible within the first week of January. In the past I have always prepared for this and since I was still on my father's insurance (up until last year) he typically paid the bill (at least for medical stuff). And in the future Andrew & I won't have such an issue with this. We will be able to save and plan ahead for the $3,000 (for my deductible, his is another $3,000). However, this year was more difficult. We saved all 2013-2014 for our wedding & honeymoon, plus had our deductible saved too. But Real Estate was a pricey career to start, I've put almost $5,000 into it (classes, dues, licensing, exam, advertising, etc). So needless to say our deductible disappeared, thanks to my new career. Wh...