Skip to main content

Packing it on and figuring it out!

Packing it on and figuring it out.

I used the same pronoun to represent two different objects. It seems wrong to do that, but it leaves some mystery... did it work? are you curious?

As you might have guessed the first "it" refers to my weight. Yep, I'm gaining weight. 105 lbs. yay! I'm sooo excited to show/tell Dr. B next week! Although, I do think its all in my legs. Now that I have been walking/jogging every night, I have noticed my legs have gotten quite a bit thicker (this is a good thing). I'm don't think my legs fall in the "chicken legs" category anymore.


Now!                                                                                         2009
you be the judge...

Now, compare them to Fall 2009...
(sorry its a poor quality picture)
I know, I gotta keep working on it..

AND I blame my dad for "skrony legs" genes.  But at least they are better than they were... yipes!

And the 2nd "it" refers to medical insurance/laws.  I'm researching insurance plans/laws in mulitple states/countries amd seeing how CFers pay for all their Meds. I'm very foruntate that I can still be on my Dad's insurance (which covers 100% including clinical trials, etc). However, I want to figure it all out now, so if/when I'm no longer on my Dad's insurance I can make sure I can afford all my meds and don't have to make sacrifices like "Oh, I will never order my Cayston, because it costs $5,000 a month."

Dear CFers,
Please look into Patient Assistance programs like The CF Patient Assistance Program through the CF Foundation.  For more info click here!'
Love,
Cheriz

It's interesting how much difference there is for CF patients between states and countries.
 Some states don't have a single Cf Clinic!!!

Some patients in other countries are still fighting to get Kalydeco!
(for info on Kayledeco click here.) 

For info on the Quest for Kalydeco in other countries check out their Facebook Page : Quest for Kalydeco  or  follow them on Twitter @QuestKalydeco!
No matter where we live we should support everyone on fighting for the medications that they deserve!


Labels:

Comments

Post a Comment

Popular posts from this blog

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...
2 comments
Read more

Oh the Joys of a Colonoscopy!

Colonoscopy, Fun: As you may remember from reading my October Posts (  Oct Post #1   &  2nd Oct Post ) that I was admitted a second time that month for Gastrointestinal issues. I was having stomach cramps and what was believed to be Antibiotic Associated Diarrhea. However, CT scan revealed my colon and intestines were inflammed.  After having a rough 2 months of GI issues, and cuting out most food (diary, meat, grease, carbonated beverages, and sugar). I finally am getting a Colonoscopy to see what in the world is going on! I'm been taking Probiotics, was on meds for both C. diff and AAD. I even added driking Kefir to add to the probiotics and good bacteria.  Only now am I seeing any changes, less stomach aches, etc. I add a 1/2 cup pf the Kefir to my smoothie, its not bad -yum! I really reccommend it and Probiotics (so talk to your doctor about it), it could really help you out! Read about Colonoscopies here! So I'm glad to be g...
4 comments
Read more

What Else Should I Do?

Need Some Feedback.       May has almost come to an end. I love May, nice weather, summer starts, AND its Cystic Fibrosis Awareness Month! A lot of the CF walks are in may and its a great time to raise funds and awareness for CF! However, I'm also excited that it will be June soon! June 28th is the Princeton Cystic Fibrosis Walk. I've helped organize other events in the past. Whether for school or other non-profits I've volunteered at, but this CF Walk is a little different. It is the first time, I've put together a City event. Or put together an event that is so near and dear to my heart. I'm so thankful that I had so many people sign up so quickly. Pretty much everyone family member I have on my mom's side signed up the first day. And I've have had some family and friends help me (giving me ideas, helping me recruit, etc). But, Its the first time I didn't have a committee or team behind me to help execute the ideas and actually plan the event. I lo...
2 comments
Read more