Skip to main content

Laura/Lara- two amazing gals

Laura and Lara

Today, was a pretty normal day. Work, Meds, Jog, Blog. Instead of jogging, we walked 2.5 miles. (which I recorded in my spreadsheet and I will be doing data analysis later using all the variables I can come up with...) But here is the more EXCITING part of my day:

I was asked a week ago to be a guestblogger for  Lara's Blog. She is climbing  Mt. Kilimanjaro to raise awareness & funds for CF in memory of her best friend Emma! I hope everyone goes to her blog and wishes her good luck!

She posted my introduction and guestblog today!!! So check it out Right HERE!
Lara, Thank you for your hard work and dedication to helping find a cure for CF!

AND then there is Laura ( a different Laura), she is my best friend. Laura has CF too (we met when we were really young)!!! I know she has been going through a tough time. But she is the one who got me invovled in CF awareness! My first CF fundriaser was in 2008 at a CF Walk that Laura told me I should do... and I have been doing them ever since!

So Laura, here is some more inspiration for you!



or for Laura's Video Click below!

  https://www.facebook.com/photo.php?v=10101666382188550&l=2130842238946450796

Well, time to make my stomach feeding and head to bed...

Comments

  1. Loved having you do a guest post for my blog. Thank you again! I look forward to reading your updates and daily happenings. I will definitely keep you posted with news of how the big summit goes. Wishing you and your friend Laura all the very best!

    ReplyDelete

Post a Comment

Popular posts from this blog

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...

Antibiotic Free Streak Over

Clinical Trial & Uh-Ohs: A lot happened this weekend. Thursday was my clinical trial and yay!!!!! my lung function was still same. It's 55% by Docs standards, but by the trial standard it would be considered 60 still. So don't freak out and think my lung function has dropped since I wrote the Blog Post  Welcome to the 60s (read it here) . So that's good news. In 2010, I was struggling in the high 30s and low 40s. Then in 2011 I switched to Doc B, also I was done with school. I had more time to focus on meds and exercise. My extra effort and my proactive doc brought my lungs up to 58  in 2011. And Thursday I was happy to see it at the same place. No decrease in 3 years!!!!! However, I've gotten into the mid 60s before. But that was only after hospitalizations and IV treatments. Well, in the last year I have been enrolling in a couple clinical trials. Most trials are 6 months long. I'm  currently in one now. Its a 3rd phase trial and the 2nd phase trials show...