Skip to main content

The Final Stretch

The Final Stretch

I have my "Clinic" (quarterly CF Doctor's visit) in 9 days!!! I found my Doctor last year and this April was my first complete year with him! [check out my charts of health on my "Clinics" page to see the upward trend in health starting!] He really wants me to do well and his positive attitude towards CF has really  inspired me to try really hard to do the best I can! I've always strived for what I wanted (theatre, career goals, etc), but when it came to my health (I did what was needed)... This meant doing the "majority" of my meds, but putting lots of needed stuff on hold.

Examples: I would get home from play practice, not make my stomach feeding or not do my night nebs, because I was too tired. AND Weekend trips, whether with a youth group or friends, I wouldn't pack my meds. This continued through my college years.

That has all changed now. I refuse to let other things get in they way. When I'd skip one night, I couldn't see a big difference the next day and so I convince myself one more night....and it spirals out of control, until I'm sick and its too hard/ hurts to do meds.

So, I can say since having Dr. B, I have honestly put my health first. I want to be the healthiest I can be! I want to have a career that I can work hard at and kids I can be healthy for. I want to run after them, play baseball with them, etc. And lung functin takes time to bring up, so I made the decision last year to try really hard, no EXCUSES and to see what I can do!


And I find additional motivators along the way, running the 5K with my Uncle Dan in the Fall, even writing this blog helps hold me accountable.

BUT my main one is the Amazing Race(my favorite TV program). Now, I know, I will almost 100% likely get tossed from the pile right away, due to medical problems. The only medical problem they really had on the show was Asthma... So CF, would look risky to them.

But I love the show, I love the idea of traveling, and I'm a goal/ challenge motivated person, so it fits perfect. Dr. B said I had to get my weight up, my FEV1% up, and be able to jog a couple miles... and I have 9 days to prove to him I did it and can do it! I know the reality of my situation and the chances to get on the show are slim. But if I can get Dr. B to consent to it, that means he thinks I could do it and THAT ITSELF is pretty much a win worth more than any money.  

And now, to convince my sister to audition with me....and kick CF's booty at Clinic!

Comments

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...

Beginning of the Year Troubles

Normal "beginning of the year" troubles for Andrew and I only really consist of one topic: Our Deductible [please no Obama, or government bashing] I've always had high deductibles ALL MY LIFE (no matter who was president). The problem is I hit my deductible within the first week of January. In the past I have always prepared for this and since I was still on my father's insurance (up until last year) he typically paid the bill (at least for medical stuff). And in the future Andrew & I won't have such an issue with this. We will be able to save and plan ahead for the $3,000 (for my deductible, his is another $3,000). However, this year was more difficult. We saved all 2013-2014 for our wedding & honeymoon, plus had our deductible saved too. But Real Estate was a pricey career to start, I've put almost $5,000 into it (classes, dues, licensing, exam, advertising, etc). So needless to say our deductible disappeared, thanks to my new career. Wh...

Sunny Days!

Since my last Cystic Fibrosis clinic, which you may have read about on my Facebook page , I have been working on a couple goals... both medical and personal. And boy do I love this summer weather! Summer weather combines one medical and one personal goal!! EXERCISE + MORE FAMILY TIME! I'm not one to enjoy extreme heat (90+), but have really LOVED the nice days outside with the family this summer! Sun (+sunblock LOL), freezie pops, flip flops, YES PLEASE! We have even spent some time at the lake this summer! Our kiddo(s) LOVE(S) the water and so does Andrew! I don't enjoy being IN the water as much as I like being ON the water. We have spent a dozen days this summer at our two favorite park/splashpads as well! Even days spent at home are usually in the kiddie pool. We are enjoying this weather and getting some exercise too! WALK! I try to talk advantage and do some walking when its nice out and I feel good. My Physical Therapist at clinic said it needs to be 15 mins of full acti...