Skip to main content

The Final Stretch

The Final Stretch

I have my "Clinic" (quarterly CF Doctor's visit) in 9 days!!! I found my Doctor last year and this April was my first complete year with him! [check out my charts of health on my "Clinics" page to see the upward trend in health starting!] He really wants me to do well and his positive attitude towards CF has really  inspired me to try really hard to do the best I can! I've always strived for what I wanted (theatre, career goals, etc), but when it came to my health (I did what was needed)... This meant doing the "majority" of my meds, but putting lots of needed stuff on hold.

Examples: I would get home from play practice, not make my stomach feeding or not do my night nebs, because I was too tired. AND Weekend trips, whether with a youth group or friends, I wouldn't pack my meds. This continued through my college years.

That has all changed now. I refuse to let other things get in they way. When I'd skip one night, I couldn't see a big difference the next day and so I convince myself one more night....and it spirals out of control, until I'm sick and its too hard/ hurts to do meds.

So, I can say since having Dr. B, I have honestly put my health first. I want to be the healthiest I can be! I want to have a career that I can work hard at and kids I can be healthy for. I want to run after them, play baseball with them, etc. And lung functin takes time to bring up, so I made the decision last year to try really hard, no EXCUSES and to see what I can do!


And I find additional motivators along the way, running the 5K with my Uncle Dan in the Fall, even writing this blog helps hold me accountable.

BUT my main one is the Amazing Race(my favorite TV program). Now, I know, I will almost 100% likely get tossed from the pile right away, due to medical problems. The only medical problem they really had on the show was Asthma... So CF, would look risky to them.

But I love the show, I love the idea of traveling, and I'm a goal/ challenge motivated person, so it fits perfect. Dr. B said I had to get my weight up, my FEV1% up, and be able to jog a couple miles... and I have 9 days to prove to him I did it and can do it! I know the reality of my situation and the chances to get on the show are slim. But if I can get Dr. B to consent to it, that means he thinks I could do it and THAT ITSELF is pretty much a win worth more than any money.  

And now, to convince my sister to audition with me....and kick CF's booty at Clinic!

Comments

Popular posts from this blog

First blog: Hello

My first Blog: A little About Me I'm not sure why I have decided to start a blog, however, here I am.  I have honestly thought about writing about my life for years, but have always chickened out. I have finally decided to share the experiences life has thrown at me. The biggest reason I have been asked to blog by people is because of everything I have dealt with medically. I have Cystic Fibrosis and a few other medical problems...This is probably the best reason why I should blog. I can relate to others who are dealing with medical problems, however,my CF is also why I did not want to write this blog. CF can be embarssing and annoying sometimes... but it  has helped define who I have become to be as a person. Therefore, (yes, even though I want it cured) I don't hate having CF. Let me start off with some basic info and statements. I'm 26 yrs old and have dealt with CF all my life. In this blog you will hear recent stories (good, bad, embarassing); a...

Holding Down the Fort

My husband, Andrew, is currently at Wartburg Theological Seminary and is starting his first week of his second year there. Every year he lives on campus for one week. He enjoys starting each semester on campus where he can build friendships with other students and professors. It's the only time he is on campus. Usually he does long-distance learning, online, from home. It was the only way we could manage him doing a four year Master degree program while working. This week is the hardest for us. However, we have something on Thursday and Friday this week, so Andrew will only be gone 3 days instead of the typical full five. So that will make this week a bit easier than the other semesters. It's hard for Andrew to be away, although I know he is having a blast. We send random pictures back and forth like a book he may be reading or a game I may be playing with our kiddo. It is hard for the kid(s) to not see Andrew every day. We are foster parents and stability is a BIG issue for ...

Close to a Cure?!?!?! and Thank You!!!!!!!!

Help Us Find A Cure & Thank you! Lots of new meds and treatments are being researched thanks to the CF Foundation and the people who support it! Thank you soooo much everyone for supporting me and the CF GreatStrides Walks! I hope you enjoy hearing about the cool new ways steps are being taken towards finding a cure for CF and how everyone has helped me and us (the cf community)! New Treatments And Break Throughs: As you may know, from reading my last couple blogs. Some exciting news was released!  VX-809 + Kayldeco Phase 3 (6 month clinical trials) has started! Which means if all goes well, this could be on the market in the next year or two. This drug helps target the actual faulty gene. It will help improve our lung function (hopefully gain some back, the part that isn't damaged) and will help us to slow the decline of our lungs health tremendously! This is the treatment for my mutations!To read more about this new treatment click Here! Also, there are other medic...