Skip to main content

The Final Stretch

The Final Stretch

I have my "Clinic" (quarterly CF Doctor's visit) in 9 days!!! I found my Doctor last year and this April was my first complete year with him! [check out my charts of health on my "Clinics" page to see the upward trend in health starting!] He really wants me to do well and his positive attitude towards CF has really  inspired me to try really hard to do the best I can! I've always strived for what I wanted (theatre, career goals, etc), but when it came to my health (I did what was needed)... This meant doing the "majority" of my meds, but putting lots of needed stuff on hold.

Examples: I would get home from play practice, not make my stomach feeding or not do my night nebs, because I was too tired. AND Weekend trips, whether with a youth group or friends, I wouldn't pack my meds. This continued through my college years.

That has all changed now. I refuse to let other things get in they way. When I'd skip one night, I couldn't see a big difference the next day and so I convince myself one more night....and it spirals out of control, until I'm sick and its too hard/ hurts to do meds.

So, I can say since having Dr. B, I have honestly put my health first. I want to be the healthiest I can be! I want to have a career that I can work hard at and kids I can be healthy for. I want to run after them, play baseball with them, etc. And lung functin takes time to bring up, so I made the decision last year to try really hard, no EXCUSES and to see what I can do!


And I find additional motivators along the way, running the 5K with my Uncle Dan in the Fall, even writing this blog helps hold me accountable.

BUT my main one is the Amazing Race(my favorite TV program). Now, I know, I will almost 100% likely get tossed from the pile right away, due to medical problems. The only medical problem they really had on the show was Asthma... So CF, would look risky to them.

But I love the show, I love the idea of traveling, and I'm a goal/ challenge motivated person, so it fits perfect. Dr. B said I had to get my weight up, my FEV1% up, and be able to jog a couple miles... and I have 9 days to prove to him I did it and can do it! I know the reality of my situation and the chances to get on the show are slim. But if I can get Dr. B to consent to it, that means he thinks I could do it and THAT ITSELF is pretty much a win worth more than any money.  

And now, to convince my sister to audition with me....and kick CF's booty at Clinic!

Comments

Popular posts from this blog

CF isn't all tears and saddness. Get a Full Picture.

  CF and Laughing Cystic Fibrosis can bring sad times and times of tears (like losing a close friend with CF, etc) BUT, it can bring so much joy and love. I've noticed most people love to talk about the people they meet while traveling. This is usually, because they have learned something from the person. Or the person is considered unique to them. I can do the same thanks to my Cystic Fibrosis. I may not have traveled much in my life thus far, but I have learned mountains of lessons from my CF. [Picture right:  Me ready for surgery in 2nd grade!] Forgive my shoutouts (but I must recognize a few amazing people) I have met some of the most amazing doctors: Chatrath, Dr. B Nurses: Sara & Marie (from Clinic), Lizzard, Melody (best IV stick ever), Deb, and Kris (you know a nurse is amazing if you love her after putting tubes down your nose!) Respitory Therapists: Jeannette, Lanell, and Don (you da Man) And Cookie Marrow (Musical Therapist- She would sing to me a...

Video Blog: Life in the hospital (as a child)

The daily life in the hospital! Most people cringe at the idea of a hospital. However, when I was little I never minded going into the hospital. I usually would have at least one other friend with Cystic Fibrosis to hang out with there (before we knew about the "CF Bugs"). I didn't love being sick, but I loved my CF friends that I would hang out with. Also the hospital, nurses, and my parent's tried to make it a "normal" environment. I got up and put on cute clothes, "walked to school", flirted with a couple CF boys, did homework, came "home" (back to my room), my friends would ask my parent if I could go play with them. We'd hang out in the play room or go on a walk with one of my parents! My dad loved taking me on walks and I LOVED going on our walks! Here is a video blog of the route we took and bit of information on what is was like growing up (for a chunks at a time) in the hospital! (it is posted via youtube, let is dow...

How Fostering and CF impact my work

I haven't been on my blog much.... I think that is because most of my blogging is currently been done on Health Union's Cystic-Fibrosis.com (here is link to all my posts on their site: https://cystic-fibrosis.com/members/cherizkunkel/ ). I decided last fall to step away from real estate after 3 years in the business. It was tough to say good-bye, especially since I had tripled my volume and business in the last year. However, I didn't have time to add any new clients; I kept saying, maybe next week, next month I can fit more work into my schedule. The truth is fostering takes a lot of time. We have between 5-8 monthly visits at the agency, 1 court ate a month, 2 home visits from the caseworker a month, plus e have 2-3 doctors/specialist appointments for our current kiddo. We have lots of paperwork we fill out, gas mile logs, receipts to add, and more! Our kiddo also participates in gymnastics and dance two nights a week. We go to a fosterparent support group with our kid ...