Skip to main content

Awesome Chipmunk Choir

Doctors Appointment..

It's so soon...my Clinic ( or Doc appt, Since Dr. B hates the term "clinic", ever since he quit the clinic and started a Private Practice)... 

He wanted me to gain weight & improve on lung function...easy...ha ha.

He broke it down into do all nebs, the VEST (which is what I tend to skip), and start jogging or biking etc...

I have been doing very good with my morning med routine, but night routines..I skip a few, not gonna lie. However, that is why I have been blogging more and on FB more... I can type and read a computer screen while doing my nebs and vest..

Why do I skip my vest? Its hilarious, it makes no sense to skip it. You see incase you don't know
what I'm talking  bout....           (This black vest inflates and shakes me)

Yep, it shakes me. So I know lots of CFers who sing while doing their vest, it makes our voices sound high pitched and weird...
(I'm not one of them....*whistles & tries to look innocent)

Seriously I shuold post one on youtube...lol. Here is one I found..
She reminds me of myself at that age!
http://www.youtube.com/watch?v=qqKo9rZEC3w

(I'm a bit of a movie nut, so forgive me) BUT you know in My Best Friend's Wedding... the day of the Wedding in the background of the one scenes, there's a shot of 3 guys singing harmony after sucking in some balloons' helium.... ---> kinda sounds like that...

So have you heard of  "The Virtual Choir" that Eric Whitacre formed?
http://ericwhitacre.com/blog/the-virtual-choir-how-we-did-it


 I think he should have a choir with all people (CFers, Asthmatics, etc) who use the vest, to perform! Ha ha ha. It would sound hilarious. And yes, you can do harmony while shaking in the vest. It has been done before...

Meds done, I'm going to bed!

Labels:

Comments

Post a Comment

Popular posts from this blog

Today's BIG Appointment

 I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL   On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...
18 comments
Read more

Updates!

 Hey everyone! Sorry it’s been a while. Covid struggles have been all around and we have been focusing our on our kiddo and current life situations (jobs, home, everything really). We have been posting regularly on the Facebook page (www.facebook.com/CherizCFPage). We will keep you updated on there for now,  because we are doing some big changes to our current blog! Stay tuned!  In meantime, message our FB page if you need anything. Keep safe and stay happy.  We will be back. Promise! 
3 comments
Read more

Why I Hope this Hospital Stay is Different

Typically, I've been very stable as an adult. I'm very lucky for that stability. However, 2018 started out nowhere near where I wanted. I was admitted mid March for a virus. We aren't sure what virus I had (every test came back negative). However, I had a consistent fever over 102 the entire 5 days I was in the hospital. Once I was fever free for 24 hours and I started eating better, they let me return home. I was excited to leave and get back to my everyday life. But, considering now a month later (and re-admitted), I think I should of just done a two week tune-up last month while I was in already. Live and learn. As you know (I'm sure) I have been trying to get my lung function back up to around 55-60%. 60% is my goal and it really is the highest my lung function can get, due to all the permanent scarring. I started Orkambi in October 2016. At that time it was the newest gene-modifier drug on market for CF patients (with my mutations).  After going on Orkambi I droppe...
2 comments
Read more