Skip to main content

Um..Need to clear my head.

I was having a good day, it was one of my babysitting girl's bdays! We went for ice cream, I hung out with a friend and watched "Game of Thrones". I really liked it and I'm hoping to watch more this wknd.

Then I logged onto Facebook to see that my best friend Laura (with CF) is down in lung function, on oxygen at night and her doctor is putting her on the Transplant list.

I have lots of thoughts going through my head the MAIN one is "Please let her get a Tx soon, heal well and fast, and live her full life, they way she deserves to! PLEASE, PLEASE, PLEASE!"

I can't imagine how she must feel, I know I'm sad knowing she is at point she needs one, but HAPPY she will get on the list! Happy, Sad, Scared, Excited. How do I feel..?

The worst part is knowing that she is pain. I just want to take all that away, give her some good n plentys (one of our fave candy), kiss her on the forehead, tell her I love her, and that before she knows it she will have new lungs, lungs where she can, jog, bike, climb rock walls, do whatever she wants to!

Laura, I know you will read this: Remember after the Tx you will feel soooo much better! I know it is scary, but that is why you have family and friends to support you! Just try to look past the scary and the see the beautiful chance you have to start over! Its like a rainbow after the storm!

Comments

  1. Hi there Cheriz - it's nice to "meet" you! I'm so sorry to hear about your friend. I've had a few good friends go that route, and it is REALLY hard to feel so helpless in that situation! I'll send some prayers for you and her. I've added your blog to the CF Blogroll and look forward to reading more from you!

    ReplyDelete
  2. It is just waiting now, her evaluation, t osee if/how much her stats go lower, then to actually get the lungs.. Waiting is the worst part. BUT she is a trooper! THANKS fo adding mt othe the CF Blogroll!

    ReplyDelete

Post a Comment

Popular posts from this blog

5K. I could cry. Beyond Annoyed.

My 5K I paid my registartion fee weeks ago, have been training and I'm ready for the 5K. However, I didn't get to run my 5K today. Why? Because Cystic Fibrosis decided to one up me. I got my spots back friday, and they just got worse and worse. They look like this: They take over my feet, and sometimes my calves. I posted about this a few weeks ago. I had them during the last few performances of Hairspray. I call it the "Mummy disease" because when it happens my joints freeze up and I can't move. So the morning of my 5K I wake up and they are on my thighs...     and on my arms. This is the worst they have been in years. I took pictures to show Dr. B at my clinic on the 11th.  I'm just really bummed and upset about my weekend! I was supposed to run my first 5K!!!!! I then had a bags tournament in Peoria for the Dream Factory, and was then going to head to Champaign for Sat night- Monday! My friend Alex, reserved me a ticket for Ren...

Calling All Who Care!

     Please Read : Okay, so first off I want to say that this post is tough. It's tough to think about and write. However, it is extremely important and a huge topic in the CF Community, and is VERY NEAR AND DEAR to MY HEART!  First I want to ask you... What if I told you I needed a Transplant. That I needed to reach a certain weight, get my kindeys functioning better, get a higher pain tolerance, and get off a couple medications I take right now. What if I said I couldn't receive a 2nd chance at life unless I reached these goals and I raised a certain amount of money that seems impossible to raise. What if I had been in and out of the hospital off and on for the last year, with many surgeries, had multiple infections and my lung function dropped from 40s to the teens and now is slowly dropping still. What if I was starting to wonder if my decision to go through the grueling Transplant tests was worth it. What if I start to get down about my cf and wondering why ev...

A Hospital at Home

Coming home from the hospital takes a balance..... Wait.... Did I just say home from the hospital??? That's right!  I get to leave Wednesday the 18th, after 8 days in the hospital. It was a logistical thing. I have a super important court date on for "Shoes (our AMAZING foster son) soon." So Doc knew before he admitted me that I would be leaving by that day... So what does this mean for me and my health??? Well, I need to make sure I continue the same treatment schedule I would in the hospital. So 4 sets of nebs a day. 8am, noon, 4pm, 8pm. Which means I finish my course of IVs at home. I will be on IV's at least until 27th (so 1.5 weeks left). I came into the hospital on Tuesday the 10th, but we didn't realize until Friday the 13th that my Psuedomonas is resistant to all of the antibiotic options for IVs except one med. So on the 13th we switched to Avycaz, which is a newer, hard hitting antibiotic that was brought to market less than 3 years ago. We were hoping I...