National CF Awareness Month!

May has been declared National Cystic Fibrosis Awareness Month. I look at this month as an opportunity to share my story and spread awareness of CF.

If you look at my facebook page... you can tell during the Month of May I stay a little focused on CF.

Why? and Isn't it depressing? No.

Yes, it is sad thinking back to memories with friends with Cf that have passed; however, that is EXACTLY why May is so important to spread the awareness of how CF affects us.

I think of all the time I spend pushing CF awareness (esp. in the month of May) is for all of my friends who have passed away, its their memory that motivates us to make sure future generations with Cf have a better chance from the start!

Losing friends to CF, and not being able to see the ones that are alive ( due to bacteria spreading-its frowned against)is tough, the toughest aspect of CF. I would love to see my friend Laura, but we both know it is better to not be around each other.

We write alot, FB, email, etc. I'm looking forward to Skyping soon with her!

5K. I could cry. Beyond Annoyed.

My 5K I paid my registartion fee weeks ago, have been training and I'm ready for the 5K. However, I didn't get to run my 5K today. Why? Because Cystic Fibrosis decided to one up me. I got my spots back friday, and they just got worse and worse. They look like this: They take over my feet, and sometimes my calves. I posted about this a few weeks ago. I had them during the last few performances of Hairspray. I call it the "Mummy disease" because when it happens my joints freeze up and I can't move. So the morning of my 5K I wake up and they are on my thighs... and on my arms. This is the worst they have been in years. I took pictures to show Dr. B at my clinic on the 11th. I'm just really bummed and upset about my weekend! I was supposed to run my first 5K!!!!! I then had a bags tournament in Peoria for the Dream Factory, and was then going to head to Champaign for Sat night- Monday! My friend Alex, reserved me a ticket for Ren...

My Dad Deserves More Than 1 Day!

Happy Fathers' Day to ALL the Fathers out there! I wanted to post a list to why I'm sooo thankful for my dad (its faster, bit more fun, and I gotta get ready for my Dad's Cookout still)!!! Top 15 (10 isn't enough..lol) reasons Dad should get more than a day of celebration: 15. He loves meeting people, making friends, and is quite social. 14. When something goes wrong, he is the person that can say the right thing to make me smile :-) 13. Is always honest. 12. Few yrs ago, he gave me HIS car, (so i could get back and forth to work/play practices) He rode his bike to work and back (he enjoys it too tho) 11. Best Sense of Humor! 10. He never complains, ever! 9. Growing up my Dad worked 6am-3pm at one job and 4:30-10pm at another. 8. Dad still managed to go to 99.9% of my performances 7. He is the least judgemental person ever, he talks to & helps everyone! 6. He is a pro at making doctors, insurance companies, & hospitals do ...

Today's BIG Appointment

I discussed last week about my recent struggles & goals. I have been dealing with a lot all at once! Family planning (update on that in 2 weeks), my Grandma's funeral, lower lung function. Through it all I have remained very compliant with my meds! My health is VERY important to me. So this last weekend I took my vest machine, wabi sterilizer system , and packs of ensure to my parent's for the weekend. I wanted to make sure I did everything. While it was a sad occasion, it was still pleasant seeing almost all of the family together again. Actually 27 out of 29 of the cousins made it to the funeral. Grandpa is in the middle of the picture (can you find me?) LOL On top of my medications I have been doing some dancing & walking, but no jogging or anything. I'm still counting calories on my fitbit (hitting over 3000) a day (& 40 grams of protein, 50 grams of fat at least). I knew I was feeling a bit better than before, but wasn't sure what to expec...

Cheriz: My life with Cystic Fibrosis

Search This Blog